Here Are Some of My Flashbacks: For Doctors and Delegates and Professors to Dream About Like I Do

I just thought about the resident who not only pulled out my PIC line so hard it left a fistula that caused severe pain that was ignored by UVA dialysis for months years later because he didn’t want to be the doctor to a “mental case” who also told my mother I must be sneaking lithium on the side because of course everyone wants to throw up all day every day and be tied to a PIC line for hydration on their 40th birthday….. Same resident, taught by UVA medical faculty, theorized I had late developed bulimia despite 7+ weeks in the hospital and acute kidney failure I now know.  Or it was lithium toxicity, who knows, UVA doesn’t keep medical records very well.  And they certainly don’t dialysize wastes of space like me who have diagnoses no matter how sick we are….

I remember the attending who complained over my bedside about the cost of the Zofranthat was helping my intense nausea a little to the fellow. As if I wasn’t worth anything. Mysteriously my Zofran was stopped one night and I was wretchedly ill all night until another doctor intervened and gave me back the Zofran.

I remember the nurse who wouldn’t talk to me but would gossip about me to my room mate and other nurses and who contradicted the doctors and also told me I must want to vomit. 

I remember being treated like a piece of meat and dragged from one room to another to be catheterized (now that I have heard the real story from UVAnurses I remember it correctly) because my room bed wasn’t set up for such procedures and I know I ended up with symptoms from this rough treatment for a month.  I remember nobody comforting me or warning me it might hurt as is usual medical procedure but instead scaring me by saying my bladder was 80% full and could burst and it must have been the resident since UVAswears both nurses present say they didn’t say it but mysteriously no one can identify or will identify the resident present.  Her name was on the wall, not so hard to find..

I remember being told my kidneys would be fine or they didn’t know what would happen and not being referred to a nephrologist as I should have been.  I remember leaving UVA in early ‘97 thinking I was the lowest of the low having never been a medical patient before and being in so long treated as the lowest patient of the low, all due to prejudice.  The few polite doctors and nurses stand out they were so rare.

I remember being afraid of doctors for years after this, finally overcoming it and now regaining my fear after 2 unnecessary weeks in UVA 5 East for a steroid reaction an arrogant attending was determined to diagnose as bipolar disorder and even more determined to be absolutely adored and obeyed. 

Most of all I will never forget losing my half-sister because I was drugged up on drugs I should never have been on, withdrawing, forgetting, not myself and having her one visit spend with her refusing to even speak to me.  I will never forget the pain of that nor what UVA doctors did lying to my mother and terrifying her and lying to my brother and scaring him and sending false information about me to all of my doctors without my permission and the threat of being sent to Western if I let my lawyer ask for my medical records or if I exercised my legal right to do so.  Now that I have read them, I know why.  So tomorrow I am not waiting for the “internal and probably endless possible investigation” into falsifying medical records, I’m calling the Charlottesville Commonwealth’s Attorney Office and reporting a crime.  Because who knows how many others have had their records completely falsified to suit some psychiatrist’s power agenda or just need to lie and who knows what damage could be done to another fine UVA program if this complete fabrication got out in court or elsewhere and I care about that unlike UVA 5 East psychiatry. 

Oh, and thanks for the fear of sleeping in my own bed and the need to sleep on my couch with a light on.  PTSD from UVA, the gift that keeps on giving and giving.  A special thanks to my delegate who knew that lowering the standard for commitment was not necessary and pushed it anyway for political reasons.  This is the woman who sat in your office and told you what the commitment rate was and you said it was like hitting a flea with a hammer.  Well I’m one of the fleas who got hit, living in your district, afraid to sleep in my own bed. Thank you Delegate David Toscano, former friend to people with disabilities. You might think about starting an investigation or study into the number of folks involuntarily hospitalized unnecessarily under the laws you passed and the rates of PTSD, unemployment, eviction, divorce, family alienation, even suicide since the rate goes up on release. Don’t worry about me, I’m too busy taking my transplant drugs on time, something 5 East couldn’t manage and too busy fighting back for all the other folks affected to give up, much to some’s chagrin..

How Many Dogs and Cats Die or Suffer Each Year Because Virginia’s TDO Screening Does Not Ask About Pets in the Home?

When people are involuntarily detained in an ER in Virginia an unlicensed Community Services Board employee comes in and goes through a screening form which besides not asking about domestic violence, leading to a preventable murder trial in Fairfax in the last few years, also does not ask about pets in the home.  Picture a pet owner strapped to a gurney with a non-licensed clinician going through an inadequate form, trying to answer questions usually after being shot up with Haldol and barely able to speak and ask yourself if the question if not asked, how many barely conscious adults will remember to tell this person with the power of freedom or hell over them that they have a dog or cat at home that needs feeding and walking and tending?  Not too many is my guess.  Do hospitals ask about pets in the home? No, they do not.  So unless the person being locked up against their will for being different or annoying or unable to care for themselves supposedly or suicidal sometimes has friends or family who still act like they care and who have keys to their homes and will take on the care of a dog or a cat, a dog or cat or more than one dog or cat may starve to death or suffer with no water or end up dead for the person locked up “for their own good” to find on their return from the hell that are all our psychiatric hospitals in this great state.  Good job Virginia!

ADAPT Action Report Including Video of ADAPTERs Getting Up Capitol Steps at link Below

http://www.adapt.org/freeourpeople/cca09/video.htm

The Community Choice Act is for all of us and all of our families.  It must not be left out of health care reform for all our sakes.

Saturday Link Fest

Two from the amazing and tireless advocate for people living in nursing homes and other institutions who could live at home if supports were available, Steve Gold:

   1.  “Do Non-Institutional Long-Term Care Services Reduce Medicaid
Spending?” written by H.S Kaye, M. LaPlante, and C. Harrington.  It is in
the journal Health Affairs, vol 28, no 1 (Jan/Feb 2009). 
http://content.healthaffairs.org/index.dtl

    2.  “Taking the Long View: Investing in Medicaid Home and
Community-Based Services Is Cost-Effective” written by R. Mollica, E.
Kasser, L. Walker, and A. Houser. It is in the publication entitled
INSIGHT on the Issues, vol I26 (March 2009), a publication of the AARP
Public Policy Institute.  www.aarp.org/ppi

From Stephen Drake of Not Dead Yet (yes it’s on

 Fox, yes I know you can deal if you have to, I did ;) ).

http://notdeadyetnewscommentary.blogspot.com/2009/03/georgia-ndydisability-activist-on-fox5.html

How will people struggling with substance use disorders and trying to get treatment with inevitable lapses along the way get that help if this kind of thing goes forward?  See below:

http://dissentingjustice.blogspot.com/2009/03/targeting-poor-some-states-propose-drug.html

Sign and Share the Petition for Optimal Dialysis in the U.S.: Save Lives

 
Every Other Day Dialysis

 

  

View Current Signatures   –   Sign the Petition  

The Petition Lives! Make it viral!


 

To:  Congressional Kidney CaucusWe, the undersigned, ask the Congressional Kidney Caucus to advocate for the Centers for Medicare and Medicaid Services (CMS) to increase the number of routinely reimbursed hemodialysis treatments from three per week (156/year) to every other day (183/year).

We are people on dialysis, care partners, health professionals, family, and friends. Dialysis is not the end of life, but can and should be a new beginning. We believe that so-called “adequate dialysis” (three short treatments per week) merely allows people who need dialysis to hang onto life unproductively–in essence, many are prevented from living the life they were meant to live. This need not be the case! Research has proven that more treatments mean healthier lives, fewer hospitalizations, longer survival, increased productivity, and less overall cost to the healthcare system for people on dialysis.

The U.S has the worst dialysis outcomes of any industrialized nation. Supporting every other day treatments will allow those managing their illness with conventional hemodialysis to avoid the ‘long weekend’ with no treatment—which many studies have shown triples the risk of sudden death from a heart attack. Even this won’t allow the U.S. to catch up; that won’t happen until longer and more frequent treatments are made more widely available. But it’s a start! Please give this vital change your support!

Sincerely,

The Undersigned

 

 

View Current Signatures
 


The Every Other Day Dialysis Petition to Congressional Kidney Caucus was created by Independent Dialyzors and written by Rich Berkowitz (rjberkowitz@mail.com).  This petition is hosted here at www.PetitionOnline.com as a public service. There is no endorsement of this petition, express or implied, by Artifice, Inc. or our sponsors. For technical support please use our simple Petition Help form. 

tags:   CMS   Dialysis   Hemodialysis   kidney   Medicare   Renal  

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Ring That Allegedly Helped Kill People with Disabilities and Older Folks Going Down

Final Exit, and no don’t google and go to their site or any site connected with them please, is going down.  Read Not Dead Yet’s last 3 posts about it at:  http://notdeadyetnewscommentary.blogspot.com/  Stephen Drake who writes the blog and works for Not Dead Yet is going to be on TV tomorrow, Sunday at 11:45 on Fox News–if you have never watched Fox news you have time to figure out which channel it is between now and 11:45 a.m. :) .

Final Exit talks about “assisting” and people who are “terminal” but in reality an investigation by Georgia’s Bureau of Investigation using an undercover agent found that if the person accepts their “help” they tell them they will hold down their hands if they change their minds after starting to use the suicide  method they use.  Um, how is that not murder?  They are being investigated for the death of a man who had recovered from cancer and was cancer-free at the time of his death.  People who knew him said he drank too much and was upset about his post-surgery appearance but in no way was this man expected to die by his doctor. 

They are also under investigation for the death of a depressed woman who had family near by but wanted to commit suicide so despite their claims that they thoroughly screen their “clients” if they are guilty in that case it is clear they did not screen at all because if they had they would have found out that this woman had family who loved her and were ready, willing and able to love and be there for her if Final Exit had contacted them instead of telling her it was fine for her to kill herself.  And of course now we know it is possible that if this depressed woman changed her mind her Final Exit helpers might have exercised a Ulysses clause and killed her by holding down her hands. 

I have to say it’ s been a good few days.  Legislators stood up for their principles today, police are arresting really bad folks who are suspected in up to 200 deaths and President Obama and Congress is giving  a one time payment of $250 to everyone on SSDI and SSI: (SSDI is disability social security for people under 65 who payed FICA taxes for a long enough time to qualify and can no longer work due to illness or disability, SSI is for children, older folks and people between 18 and 65 who did not earn enough FICA credits to receive SSDI or minimum Social Security Retirement benefits.  Children will not be getting the payments.)  This time instead of making folks fill out a form and trying to let everyone know they are eligible, payments will simply and efficiently be deposited into the bank accounts Social Security now requires folks on SS to have to prevent theft of checks that used to be rampant. 

Yup, a good few days. :)

What I Would Write if Virginia Wasn’t an Authoritarian Commonwealth

Virginia Residents Only: Link to Easily Contact Your Senator and Delegate About SB1142 and HB2396

http://salsa.democracyinaction.org/o/1838/t/8648/campaign.jsp?campaign_KEY=26595

Please note this easy to use online tool is only available to Virginia residents.  If you are not from Virginia it will not click you through to any Virginia legislator.  Please use this tool to let your Senator and Delegate know what you think.

What Could Go Wrong If You Don’t Require a Lawyer for Juveniles in Commitment Hearings? This.

Thank you to the Senate Courts of Justice Committee for passing by indefinitely SB 1303 which would have allowed commitment hearings for juveniles to be held without a lawyer and without a Guardian ad litem.  It would have left this up to the judge’s discretion instead of current law which requires the presence of both.  Since juveniles as well as adults can be committed to for-profit psychiatric hospitals, although the story below is beyond rare, in Virginia there was a problem with abuse of process with adults in commitment hearings for gain more than a decade ago.  So by killing this bill, the Senate Courts of Justice Committee has ensured that the below could not happen to teenagers in the psychiatric commitment setting as it did shockingly for years in Pennsylvania in the Juvenile criminal court. 

Pa. judges accused of jailing kids for cash

WILKES-BARRE, Pa. – For years, the juvenile court system in Wilkes-Barre operated like a conveyor belt: Youngsters were brought before judges without a lawyer, given hearings that lasted only a minute or two, and then sent off to juvenile prison for months for minor offenses.

The explanation, prosecutors say, was corruption on the bench.

In one of the most shocking cases of courtroom graft on record, two Pennsylvania judges have been charged with taking millions of dollars in kickbacks to send teenagers to two privately run youth detention centers.

“I’ve never encountered, and I don’t think that we will in our lifetimes, a case where literally thousands of kids’ lives were just tossed aside in order for a couple of judges to make some money,” said Marsha Levick, an attorney with the Philadelphia-based Juvenile Law Center, which is representing hundreds of youths sentenced in Wilkes-Barre.

Prosecutors say Luzerne County Judges Mark Ciavarella and Michael Conahan took $2.6 million in payoffs to put juvenile offenders in lockups run by PA Child Care LLC and a sister company, Western PA Child Care LLC. The judges were charged on Jan. 26 and removed from the bench by the Pennsylvania Supreme Court shortly afterward.

No company officials have been charged, but the investigation is still going on.

The high court, meanwhile, is looking into whether hundreds or even thousands of sentences should be overturned and the juveniles’ records expunged.

Among the offenders were teenagers who were locked up for months for stealing loose change from cars, writing a prank note and possessing drug paraphernalia. Many had never been in trouble before. Some were imprisoned even after probation officers recommended against it.

Many appeared without lawyers, despite the U.S. Supreme Court’s landmark 1967 ruling that children have a constitutional right to counsel.

The judges are scheduled to plead guilty to fraud Thursday in federal court. Their plea agreements call for sentences of more than seven years behind bars.

Ciavarella, 58, who presided over Luzerne County’s juvenile court for 12 years, acknowledged last week in a letter to his former colleagues, “I have disgraced my judgeship. My actions have destroyed everything I worked to accomplish and I have only myself to blame.” Ciavarella, though, has denied he got kickbacks for sending youths to prison.

Conahan, 56, has remained silent about the case.

Many Pennsylvania counties contract with privately run juvenile detention centers, paying them either a fixed overall fee or a certain amount per youth, per day.

In Luzerne County, prosecutors say, Conahan shut down the county-run juvenile prison in 2002 and helped the two companies secure rich contracts worth tens of millions of dollars, at least some of that dependent on how many juveniles were locked up.

One of the contracts — a 20-year agreement with PA Child Care worth an estimated $58 million — was later canceled by the county as exorbitant.

The judges are accused of taking payoffs between 2003 and 2006.

Robert J. Powell co-owned PA Child Care and Western PA Child Care until June. His attorney, Mark Sheppard, said his client was the victim of an extortion scheme.

“Bob Powell never solicited a nickel from these judges and really was a victim of their demands,” he said. “These judges made it very plain to Mr. Powell that he was going to be required to pay certain monies.”

For years, youth advocacy groups complained that Ciavarella was ridiculously harsh and ran roughshod over youngsters’ constitutional rights. Ciavarella sent a quarter of his juvenile defendants to detention centers from 2002 to 2006, compared with a statewide rate of one in 10.

The criminal charges confirmed the advocacy groups’ worst suspicions and have called into question all the sentences he pronounced.

Hillary Transue did not have an attorney, nor was she told of her right to one, when she appeared in Ciavarella’s courtroom in 2007 for building a MySpace page that lampooned her assistant principal.

Her mother, Laurene Transue, worked for 16 years in the child services department of another county and said she was certain Hillary would get a slap on the wrist. Instead, Ciavarella sentenced her to three months; she got out after a month, with help from a lawyer.

“I felt so disgraced for a while, like, what do people think of me now?” said Hillary, now 17 and a high school senior who plans to become an English teacher.

Laurene Transue said Ciavarella “was playing God. And not only was he doing that, he was getting money for it. He was betraying the trust put in him to do what is best for children.”

Kurt Kruger, now 22, had never been in trouble with the law until the day police accused him of acting as a lookout while his friend shoplifted less than $200 worth of DVDs from Wal-Mart. He said he didn’t know his friend was going to steal anything.

Kruger pleaded guilty before Ciavarella and spent three days in a company-run juvenile detention center, plus four months at a youth wilderness camp run by a different operator.

“Never in a million years did I think that I would actually get sent away. I was completely destroyed,” said Kruger, who later dropped out of school. He said he wants to get his record expunged, earn his high school equivalency diploma and go to college.

“I got a raw deal, and yeah, it’s not fair,” he said, “but now it’s 100 times bigger than me.”

Copyright © 2009 The Associated Press.

SB 1142 Senate Substitute Elimates Civil Rights in Health Care for Every Virginia Citizen

http://leg1.state.va.us/cgi-bin/legp504.exe?091+ful+SB1142S1

B. If there is no individual eligible to make health care decisions in subsection A, the patient’s attending physician shall be authorized to provide, continue, withhold, or withdraw health care without obtaining a court order if such health care decision has been affirmed and documented as being ethically acceptable by the health care facility’s ethics committee, if one exists, or by two physicians who are not currently involved in the treatment of the patient and who did not make the determination that the patient was incapable of making an informed decision.

If you live long enough or even if you are young, you have every chance of being considered incapacitated at some point through accident or illness.  The Senate version of SB 1142, the bill that allows research not for their benefit on incapacitated and dying patients, now has a section added that says that if you have no advanced directive and no willing or available family member to act on your behalf, two doctors or an ethics committee (who are appointed by hospitals and one of which approved the Ashley X treatment out West) to decide to give you care you may not want or to withhold care you would want if you could communicate your wishes.  This bill essentially leaves no Virginia citizen safe from unwanted medical interventions or unwanted withdrawal of medical interventions.  

In addition, this bill is clearly aimed at people with psychiatric diagnoses, not people with dementia or Alzheimer’s as some have claimed as no where is dementia mentioned, but “severe and persistent mental illness” is specifically mentioned as a grounds for guardianship and a right for a guardian to admit a person without due process to a psychiatric facility for 10 days with no hearing, no lawyer, no protections against abuse of the law by bad actors at ALL. 

You thought last year was bad? This year the Virginia General Assembly is trying to take away all rights to make our own health care decisions if we even end up delirious from a temporary condition and G-d forbid have a disability or illness that some doctors consider our life a “life not worth living” or alternatively some doctor wants to give your family member a drug that could kill them such as an anti-psychotic to an elderly person with dementia instead of Alzheimer’s specific drugs which do not have the high risk of heart attack and stroke that commonly prescribed  psychiatric drugs do to the point where numerous articles clearly not read by the General Assembly have come out this year warning of the dangers to the elderly of psychiatric drugs in common use. 

Your only protection against this bill is to never have a serious car accident resulting in temporary incapacity, not have a label of “serious mental illness” pinned on you at any point in your life and that can be interpreted to include severe depression, to never have an illness that results in temporary unconsciousness, in short, to never get old and never get sick or injured. 

We are back to doctors as G-ds and incredible and dangerous intrusion by the state of Virginia into our most private and personal values and decisions including our right to live. 

This bill is crossing over.  If you don’t care if your civil rights are being further eroded, don’t do anything.  If you do, write your Senator and Delegate and tell them you will not stand for this incredible intrusion into your civil rights and liberty interest in your medical care and in your right to decide how and whether you die.  Or move to another state (except Texas) that still believes in individual rights to puruse life, liberty and the pursuit of happiness.  Thomas Jefferson would hang his head in shame and so should the General Assembly of Virginia if they pass this bill as written.

Changing, Evolving, Getting Back to my Roots on this Blog

This blog was intended to be a strategic blog, a political blog, a blog to influence.  And in that choice to make it that kind of blog I lost some of who I want to be, who I used to be when I was quite young actually, who I want to be again.  I read about prison reform when I was 11 from a great present from my parents for children with packets and booklets etc.  I aspired to work on that when I grew up.  It never worked out, for one because my one tour of a prison as an adult freaked me out and I thought I could never do this, and because I went in different directions as an adult.  But in trying to fight for the rights of people labelled with mental illness and to fight the criminalization of psychiatric services and psychiatric hospitals and public perception fueled by propagandists such as the mainstream media and the Treatment (forced treatment only) Advocacy Center, I became a propagandist myself oftentimes and I tried to separate out my principles that prisoners and convicted criminals are people who should be treated as people and given good medical care, rehabilitation if wanted and needed, chances to learn skills, take courses, be prepared for life outside prison and most especially to be safe in prison from assaults and rapes by guards or other prisoners from my principles that people with mental illness labels should not be treated as if they were criminals.  Well no one should be treated as we treat criminals in this country.  No one.  So no longer will I separate out the issues of human rights in the mental health system and human rights in our prisons and jails and justice system.  It is harder to be nuanced, more work, but less emotional toil, more true to myself and less damage to my spirit.

I also believe that it is too early in our civil rights movement as people who have been in the psychiatric system to be thinking we have any real place at the table of decision makers that is not decided and “granted” by the powers that be and that as soon as any of us strays too far from the dominant paradigm of those powers that be we will be excluded from those tables.  And others will be willing to take our place and then learn that they too will be excluded if they stray and have to make their own decisions about how much good they can do versus how much independence they are willing to sacrifice.  Some will do great good despite not being able to state their minds, have and will find ways to do good without losing their place at the table and I think that is great.  But I think we are really at the place where we need to try to capture media attention in non-rigged circumstances to educate the general public on our issues. 

For instance, how many Americans do you think know that forced ECT continues in this country and in this state of Virginia? I suspect  very few folks know that.  How many Americans know the medical and brain damage caused by many of the drugs forced on people in hospitals and now outpatient forced treatment programs?  Not many but maybe a few more as drug companies come under scrutiny more in general.  Still Zyprexa stays on the market having caused more deaths than Vioxx and Vioxx is off the market.  What does that say about where we are in our history as a movement?  I say we are on a hundred year plan.  I say we are where Susan B. Anthony and her colleagues were.  And that we need to act on all fronts but we need to be realistic about where we stand and that to me means we need to find the will and the way and the courage to have protests, old fashioned protests of human rights violations in the mental health system and that we need to think about what will work more than we have. 

But for me it means that this blog will no longer be polemic as it has been at times.  I do not like the way it makes me feel nor act and I am changing it for my own sake.   I am under no illusion that I will not still be considered too “radical” (what a joke!) for the powers that be to be included in their taskforces and hidden committees and committees that mysteriously do not meet or whose meeting times mysteriously don’t reach me even if I am officially on them.  I do not feel bad about being disliked by the powers that be, as the old song says, you ain’t done nothing if you ain’t been called a red, which translates to me as I should be proud of how much animosity there is to me among the powers that be in our Department of MH/BH/MR/SA/DS whatever they are while we await the offensive name change the Department wanted all along and from folks who want me to “just be quiet” in many circles I will not mention. 

I also will not judge those who are in a different place than I.  They are where they are, they do what they do, they are not my concern.

Large Study Shows Mental Illness Without Drug Abuse Is Not Correlated With Violence

International Herald Tribune
Mental illness alone is no trigger for violence
Monday, February 2, 2009

CHICAGO: A new large U.S. study challenges the idea that mental illness alone is a leading cause of violence.

Researchers instead blame a combination of factors, specifically substance abuse and a history of violent acts, that drives up the danger when combined with mental illness in what they call an “intricate link.”

People with serious mental illness, without other big risk factors, are no more violent than most people, according to the study of more than 34,000 U.S. adults. The research was released Monday in Archives of General Psychiatry.

“Mental illness can provide the knee-jerk explanation for the Virginia Tech shootings,” but it’s not a strong predictor of violence by itself, said lead author Eric Elbogen of the University of North Carolina at Chapel Hill School of Medicine.

Elbogen compiled a “top 10″ list of things that predict violent behavior, based on the analysis.

Younger age topped the list. History of violence came next, followed by male gender, history of juvenile detention, divorce or separation in the past year, history of physical abuse, parental criminal history and unemployment in the past year. Rounding out the list were severe mental illness with substance abuse and being a crime victim in the past year.

After the 2007 Virginia Tech killings by a student ordered to get psychiatric treatment, some states considered laws adding mental health questions to background checks for gun buyers or denying weapons to people who’ve been involuntarily committed for mental health treatment.

The new research, which bolsters other similar findings, raises questions about such laws, experts said. Such legislation may be both ineffective and discourage people who need help from getting treatment.

“We are being misled by our own fears,” said Columbia University psychiatry professor Dr. Paul Appelbaum, who wasn’t involved in the new study. “We ought to be concerned about providing good treatment and helping people lead fulfilling lives, not obsessed with protecting ourselves from phantom threats that appear to be unrelated to mental illness.”

U.S. systems to treat mental illness and substance abuse are separate, uncoordinated and could do a better job treating people with both problems, Appelbaum said.

For the new study, the researchers analyzed data from the National Epidemiologic Survey on Alcohol and Related Conditions. The original survey in 2001-2002 involved more than 43,000 face-to-face interviews with a representative sample of American adults. Three years later, many of the same people, more than 34,000, were interviewed again.

Questions about violence in both interviews included:

_”Ever use a weapon like a stick, knife or gun in a fight?”

_”Ever hit someone so hard that you injured them or they had to see a doctor?”

_”Ever start a fire on purpose to destroy someone’s property or just to see it burn?”

_”Ever force someone to have sex with you against their will?”

From the responses, the researchers determined what elements raised the risk of violent behavior.

There were 3,089 people deemed to have severe mental illness — schizophrenia, bipolar disorder and major depression — but no history of either violence or substance abuse. They reported very few violent acts, about 50, between interviews.

But when mental illness was combined with a history of violence and a history of substance abuse, as in about 1,600 people, the risk of future violence increased by a factor of 10.

The relationship between mental illness and violence is there, “but it’s not as strong as people think,” Elbogen said.

Predicting who will act violently is complex, said John Monahan, a psychologist at University of Virginia’s law school, who has done similar research but was not involved in the new study.

“It is true that our crystal balls are very murky,” Monahan said. “The vast majority of violence that occurs in American society has absolutely nothing to do with mental illness.”

The large national survey, conducted by the National Institute on Alcohol Abuse and Alcoholism, included people living in shelters, hotels and group homes, as well as houses and apartments, but it didn’t include people living in hospitals, jails or prisons.

Rosanna Esposito of the nonprofit Treatment Advocacy Center in Arlington, Virginia, applauded the study but pointed out the researchers weren’t able to analyze whether the subjects were in psychiatric treatment or not. Medication for serious mental illness can reduce the risk of violence, she said.

___

On the Net:

Archives of General Psychiatry: http://www.archgenpsychiatry.com

SB1142 Proposes to Violate the Nuremberg Code In One of its Provisions

The hearing for this bill has been moved to this Thursday, February 5th at 9 a.m. in Senate Room B in the Education and Health Committee.

http://www.richmondsunlight.com/bill/2009/sb1142/fulltext/

SB1142: Advance medical directives; revises Health Care Decisions Act regarding.

An advance directive may authorize an agent to approve participation by the declarant in any health care study approved by an institutional review board pursuant to applicable federal regulations, or by a research review committee pursuant to Chapter 5.1 ( 32.1-123 et seq.) of Title 32.1 that (i) snipped OR

(ii) aims to increase scientific understanding of any condition that the declarant may have or otherwise to promote human well-being, even though it offers no prospect of direct benefit to the patient.

 Regulations and Ethical Guidelines

Back to Regulations and Ethical Guidelines Menu

Directives for Human Experimentation

NUREMBERG CODE

  1. The voluntary consent of the human subject is absolutely essential. This means that the person involved should have legal capacity to give consent; should be so situated as to be able to exercise free power of choice, without the intervention of any element of force, fraud, deceit, duress, over-reaching, or other ulterior form of constraint or coercion; and should have sufficient knowledge and comprehension of the elements of the subject matter involved as to enable him to make an understanding and enlightened decision. This latter element requires that before the acceptance of an affirmative decision by the experimental subject there should be made known to him the nature, duration, and purpose of the experiment; the method and means by which it is to be conducted; all inconveniences and hazards reasonable to be expected; and the effects upon his health or person which may possibly come from his participation in the experiment.The duty and responsibility for ascertaining the quality of the consent rests upon each individual who initiates, directs or engages in the experiment. It is a personal duty and responsibility which may not be delegated to another with impunity.
  2. The experiment should be such as to yield fruitful results for the good of society, unprocurable by other methods or means of study, and not random and unnecessary in nature.
  3. The experiment should be so designed and based on the results of animal experimentation and a knowledge of the natural history of the disease or other problem under study that the anticipated results will justify the performance of the experiment.
  4. The experiment should be so conducted as to avoid all unnecessary physical and mental suffering and injury.
  5. No experiment should be conducted where there is an a priori reason to believe that death or disabling injury will occur; except, perhaps, in those experiments where the experimental physicians also serve as subjects.
  6. The degree of risk to be taken should never exceed that determined by the humanitarian importance of the problem to be solved by the experiment.
  7. Proper preparations should be made and adequate facilities provided to protect the experimental subject against even remote possibilities of injury, disability, or death.
  8. The experiment should be conducted only by scientifically qualified persons. The highest degree of skill and care should be required through all stages of the experiment of those who conduct or engage in the experiment.
  9. During the course of the experiment the human subject should be at liberty to bring the experiment to an end if he has reached the physical or mental state where continuation of the experiment seems to him to be impossible.
  10. During the course of the experiment the scientist in charge must be prepared to terminate the experiment at any stage, if he has probable cause to believe, in the exercise of the good faith, superior skill and careful judgment required of him that a continuation of the experiment is likely to result in injury, disability, or death to the experimental subject.

Reprinted from Trials of War Criminals before the Nuremberg Military Tribunals under Control Council Law No. 10, Vol. 2, pp. 181-182.. Washington, D.C.: U.S. Government Printing Office, 1949.

Why Did Republicans Vote to Violate the Nuremberg Code Today? Are They Anti-Life?

What is going on in Virginia’s General Assembly and who is pushing an anti-life agenda through under cover of a mental health bill  and clarifying the Health Care Decisions Act? Yes, anti-life.  Allowing guardians and powers of attorney and oral consent from the dying to experiments that have no expectation of health benefit to them as patients is anti-life and anti-people with disabilities and evil. 

Me, I am going to tear up my living will/durable medical power of attorney when/if this bill/bills pass.  And wait until I move to a less anti-life state than Virginia to write another one.  I never thought I would be writing these words.  Never.  Right and wrong do exist and manipulation and deceit in the service of an anti-life,, anti-disability rights agenda are unethical no matter who you are nor how well you think of yourself and your intellect.  Very intelligent people supported eugenics in Virginia and the rest of the United States.  Very intelligent people supported killing psychiatric patients in hospitals in the ’40’s until the revelations of the Nazi regime made such a stance untenable (or politically incorrect).  Very intelligent people are equally capable of evil acts as anyone else.  And equally likely to be completely lacking in insight into the consequences of their actions on others or perhaps not to care about the effects of their actions on others.

Stand Up For What You Know Is Right Even if You Are the Only Voice

Virginia Senate Passes Name Change to Behavioral Health and Developmental Services with 5 Nays

After a push poll with 3 out of 4 suggestions including the name “Behavioral Health” on the former Department of Mental Health etc.’s website, after one Senator spoke very eloquently about how wrong and inappropriate it was to call mental health and mental retardation “behaviors”, after one woman senator said that the former DMHMRSAS said they only had 28 votes in opposition to Behavioral Health, a disappointing behavior on the part of the Department, Virginia’s Senate changed the name of the Department of Mental Health, Mental Retardation and Substance Abuse to a  name no one in any of those groups served wanted and a name that makes Virginia look backwards (Developmental) and corporate and sheep-like (Behavioral Health) and offended every citizen and their families who are forced to use the Department’s services due to lack of money or insurance or lack of alternatives where they live.

After last year I thought maybe the General Assembly was finished with insulting and degrading and ignoring the voice of people with disabilities, but I was far too optimistic to think that.    I do wish to thank the gentleman who spoke so eloquently againsgt the name change despite knowing he would lose and will try to find his name and update this post to reflect that.

Yup, “Behavioral” Is a GREAT Name for DMHMRSAS: This is what Behavioral Looks Like in Practice

 

Our Lady of Peace psychiatric hospital under state investigation

Head-banging incident sparks inquiry at Our Lady of Peace

By Patrick Howington
phowington@courier-journal.com

Locked alone in a room at Our Lady of Peace psychiatric hospital, a 17-year-old girl was allowed to beat her unprotected head on a hard floor more than 120 times last spring while as many as three employees watched.

Those employees — including a behavioral analyst — were trying to determine the cause of the teen’s self-injuring behavior. But now, the Kentucky attorney general’s office is investigating the May 13 session as a possible crime.

The investigation follows an August report from state Cabinet for Health and Family Services inspectors that concluded that the hospital “failed to … assure the safety of the patient.”

Though the girl — whose diagnoses include autism, cerebral palsy and mental retardation — “appeared dazed” afterward, a doctor wasn’t told about the incident until almost 21 hours later. The call was made after hospital staff helping the teen shower noticed a bald spot that was “pretty swollen with popped blood vessels,” one worker told inspectors.

The inspectors’ report, based partly on a video of the procedure, didn’t detail the girl’s eventual medical care or the extent of her injury. She was discharged in August.

Hospital officials declined to give her name or discuss her treatment, citing confidentiality rules. The Courier-Journal obtained the state inspector’s report through a state open-records request.

The state conducted the inspection on behalf of the federal Centers for Medicare and Medicaid Services — which requires hospitals to meet safety conditions and other requirements to receive federal funding.

The findings prompted the agency to threaten to cut off reimbursements to the Louisville psychiatric hospital and its parent company, Jewish Hospital & St. Mary’s HealthCare.

But the cutoff was averted after Our Lady of Peace changed its procedures, including adding a requirement that doctors be involved in such assessments.

Based on those changes, the Medicare program told hospital officials Sept. 12 that the facility was back in compliance with federal regulations.

“We’re trying to put in every single protection and process and policy in place to prevent any injury to any patient,” said Thomas Gessel, the hospital’s interim chief executive. “We want to make sure that we have a safe environment.”

Allison Martin, spokeswoman for Attorney General Jack Conway, confirmed Friday that the office’s Medicaid Fraud and Abuse unit is investigating the incident.

The case was referred to the office by the health services cabinet’s Child Protective Services section in July, she said.

Martin said that she could not release details of the investigation. No charges have been filed.

When asked why the six-month-old investigation has not been concluded, she said: “It’s a complex issue (and) we are looking at many different factors … and it is our goal to be thorough.”

She said Conway wasn’t available for an interview Friday because he was traveling out of state.

JoAnne Maamry, chief executive officer of Our Lady of Peace at the time of the incident, resigned in August. She is not working now.

Reached by e-mail, Maamry declined to comment on the case or her resignation.

Gessel, the interim chief, would not say if Maamry’s resignation was related to the incident, saying personnel matters are confidential.

He also said the hospital provided the attorney general’s office with some documents it asked for, but he said he doesn’t know more about the criminal investigation.

‘Assessments’ are rare

Our Lady of Peace, on Newburg Road, is one of the nation’s largest nonprofit psychiatric hospitals.

About 70 percent of its patients are younger than 18, many of them wards of the state.

Gessel said “functional analysis assessments” of disturbed and uncommunicative patients — which can include watching them hurt themselves — are fairly rare at the hospital, used on 20 or fewer patients last year.

They are made by behavioral analysts — certified clinicians who typically have advanced degrees but are not doctors or nurses.

But such assessments were suspended in August and won’t resume until safety policies are honed, Gessel said.

In a plan of corrections submitted to state and federal authorities in September, Jewish Hospital & St. Mary’s pledged that procedures for functional analysis assessments would be revised to require doctors’ involvement and having nurses present.

The company also said hospital staff would be trained to determine how long an assessment exercise should last, grounds for stopping it, and the use of protective equipment.

Despite agreeing to those and other changes, however, the company disputed that it had been out of compliance with health-care regulations.

The May 13 session involving the 17-year-old girl consisted of five 10-minute segments, including one in which she was alone, inspectors reported.

Staff members conducting the session disregarded an order from the patient’s doctor to put a helmet on her if she began banging her head, the state report said.

The behavioral analyst in charge of the session — whom the hospital refused to identify — later told inspectors that despite the doctor’s order, it was his decision when to apply the helmet, and that nurses were not present because “they would stop the session.”

After the patient hit her head on the tile-over-concrete floor 129 times, intermittently biting her arms, employees put a helmet on her. She then stopped the banging, the report said.

“The patient appeared dazed, as she swayed back and forth while knocking on the door to get staff’s attention to let her out of the room,” the report said.

Michelle Spurlock, chief nursing officer and vice president of Our Lady of Peace, would not say whether the analyst was disciplined over the incident. She said he is still employed there.

National experts on autism said that while an observation session is a valid diagnostic method, the May 13 session lacked the proper controls.

If patients regularly bang their heads, watching the behavior can help “understand what sets it off, what keeps it going,” said Dr. Fred Volkmar, director of the Child Study Center at the Yale University School of Medicine. But, “you want to be sure, first and foremost, of the person’s safety.”

“It sounds like the behavior analyst did not display good clinical judgment,” said Robert LaRue, assistant director of research and training at Rutgers University’s Douglas Developmental Disabilities Center and a certified behavioral analyst. “If you’re letting a kid hit a hard linoleum or concrete floor 130 times, you’re probably not doing it right.”

LaRue said that with a head-banging patient, he might change the assessment procedure to measure how fast a stimulus such as noise triggered head banging, rather than how long the banging lasted.

“They’re lucky that she didn’t split her forehead open,” said Sandra Harris, executive director of the Rutgers center, who has studied autism since 1972.

State inspectors’ report

In their report, the state inspectors concluded that Our Lady of Peace lacked procedures to make sure such patients received prompt medical attention.

They also wrote that hospital officials failed to thoroughly investigate the incident, reprimanded a nurse who reported it to the patient’s doctor, wrongly secluded the patient in a locked room without a doctor’s approval and failed to report the incident to state authorities.

Spurlock said the locks have been removed from the treatment room since the report was written.

Gessel said that he does not know why the incident was not reported, because it is the hospital’s normal practice to do that.

State inspectors also said the hospital failed to ask the patient’s legally appointed state guardian for permission to conduct the assessment. The guardian told inspectors that she would not have consented to an assessment that allowed the girl to continuously bang her head.

The guardian also wasn’t told that an X-ray of the patient’s head was performed and wasn’t given the results, the report said.

Reporter Patrick Howington can be reached at (502) 582-4229.

Diving Too Deep into the Ocean of Corruption and Cynicism

Icarus flew too close to the sun.  I have dived too deep into the ocean of corruption and cynicism that is Virginia’s mental/behavioral/authoritarian/coercive/punitive/retaliatory/gas-lighting/insincere/self-serving/two-faced “system” and political system  and I must now swim up to the waves so I can breathe again.

My plan is to leave Virginia and return to my home of 32 years.  I never planned to move to Virginia.   It was sheer fate that I fell so ill and spent more than 7 weeks including a week in the ICU while I was on vacation in Virginia.  The doctors thought I was too ill to live alone.  I proved them wrong but I had already moved.  I have been here 12 years now but it is really the last 3 or so that have taught me I will never be comfortable in this state.  I dove too deep, got too close to how sausages/laws are made, into the real way our lives are ruled, into the reality that in Virginia  it is still well off white men and a few women who have never known prejudice or been treated badly simply because of who they are perceived to be by others who call the shots. I have seen through the fiction of Councils with no power, Commissions and task forces that are designed to come to the conclusion wanted by the powers that be before they even begin.   I have been lied to to my face and to my ear and then had to stand and listen to fake expressions of apology/concern/respect/you-name-it.  I have seen people sell out others of their group for mere approval by their own oppressors.  I have seen so-called professionals lie about others to preserve their own unrealistic self admiration and egos.  I have seen too much.  It is time to make plans to go home.

Behavioral Health May Be A More Honest Description of What DMHMRSAS Does and Cares About

I object to to the term “behavioral health”, a term invented by managed care companies, not by individuals who seek mental health or substance use disorder services nor by the folks who treat them.  It is insulting, offensive, all that.  It is the same name used for the sex offender facility in this state.  It is stigmatizing, prejudicial.  But perhaps, for once, the Department of Mental Health, Mental Retardation and Substance Abuse is being honest about who they are and what they do and care about by pushing this name on us with a push poll on their site in the summer in which 3 out of 4 choices included behavioral health and the 4th was too vague to be usable. 

Because DMHMRSAS does care and act only on behavior, not emotions and feelings of people served by it.  DMHMRSAS does not care as an agency about the feelings of people with mental illness nor people with substance use disorders nor people with intellectual disabilities.  They offer practically no services that help people deal with feelings, they do not mandate counseling of any kind in their community services nor in their state hospitals.  They sometimes “act” as if they care about advocates with mental illness they are forced into contact with by federal and state mandates, but most of them, most of the time, are only acting as if they care and a few of them, only if others are watching them. 

So I will oppose this name change but if it passes anyway, I will have the satisfaction of knowing that DMHMRSAS has been forced to be honest for once about who they are and what they do and  who they care about and who they do not care about.  And that’s something.  Not much, but something, because honesty from DMHMRSAS?  Really, that’s priceless.

Regressive Mental Health Laws Inhibit Free Speech

Someone once told me that I don’t share enough about myself on this blog.  I didn’t agree but it is true that there are many important things I never write about on this blog.  Why? Because Virginia, and to be fair, most other states in this country, have now passed such regressive commitment laws that they inhibit my free speech.  Anything I put on this blog could and would be used against me in the kangaroo court they call a civil commitment proceeding under the regressive laws passed as “reform” last year due to the high emotions after Virginia Tech. in which no leader in this state was willing to step up and ask citizens not to take their feelings out on everyone with a psychiatric label or history or mislabel or even the perception of such.  Even George W. Bush eventually spoke publically of the need not to scapegoat American citizens who happened to be Muslim or from the Middle East after 9/11.  But no one in this state had the courage (sic) of George W. Bush when it came to people with psychiatric labels. 

So I don’t write as much these days.  I value honesty and full disclosure, but I value my health and well being and freedom more.   But hey,  free speech isn’t for people like me anyway, who do I think I am?  A law abiding citizen who has never even gotten a parking ticket and has voted  in every election since I was 18 except one where I was too ill? A volunteer for many groups in my community who has probably spent more money volunteering than I ever earned working?  People like me absolutely should not have free speech, that just makes good……..prejudice and bigotry and intimidation.

Who Would Lock Up Jesus Christ? The State of Virginia, That’s Who

Questioning the authority of the government, getting angry and knocking over furniture (tables in front of the temple), announcing he was the Son of G-d, attracting crowds, walking on water, preaching outside, not in a church or synagogue, no visible means of support, no home of his own, walking everywhere, upsetting people of means and status, of course Jesus Christ would be commitable under the current and soon to come lowered standards for involuntary commitment to a mental hospital in Virginia. 

But, you say, there was that one, that one who shot people up, he was one of “them”, even if he wasn’t really, even if he had a very rare disorder and even if most of “them” are less likely to be violent than the general population, still we must make an example of all of “them” because of that one.  We need someone to blame, of course we do, in fact, as we did 2,000 years ago, we need a scapegoat, someone or some group to take the blame for our own sins and our own faults and omissions.  Human beings have had scapegoats for thousands of years, why should the present be any different?  But it’s medicine or science you say.  No, it’s not.  It’s social control and it’s intolerance of difference and it’s archaic and brutal and largely avoidable if voluntary CARE is available to all, which it is not.  But never mind, we need scapegoats.  And we forget, those of us who are Christian, that G-d already gave us His only Son so that we would not need to scapegoat each other anymore. 

Merry Christmas.

State to Stop Institutionalizing Children Per Governor Kaine’s Budget Proposal

Governor Kaine’s budget proposal includes the closure of the Commonwealth Center for Children and Adolescents and the Adolescent Unit at Southwestern Mental Health Institute, both of which facilities are outliers in the use of seclusion and restraint, traumatizing practices that are an indicator of treatment failure and lack of adequately trained staff and sometimes of an institutional culture that is not amenable to change.  Institutionalizing children is known to harm them in their adult lives and to be a traumatic event in and of itself.  Children and teens who spend a long time in a total institution develop what social workers and psychologists call institutionalized personalities and have trouble living independent lives as adults. 

The closure of these last 2 state operated institutional settings for children as young as 3 and up and teenagers is a giant leap forward for Virginia’s mental health system and for the children and adolescents of Virginia.   Money is set aside in the Governor’s proposed budget to purchase services for these children and adolescent in smaller settings, most likely closer to their families and homes for most since with only 2 facilities in such a geographically large state most patients will be far away from family in either of these facilities. 

Children and teens should be served first in their own homes and if their homes are not safe places for them for a time then in the smallest setting possible, the closest approximation to a home environment possible so that children and teens wil not incorporate the self-concept that they are not worthy of a home-like environment as other children have and will not grow up to be adults who do not know how to operate in the outside world independently or how to form relationships not based on power differences as adults. 

Also slated for closure and replacement with small community  homes is the Southeastern Virginia Training Institute for citizens with intellectual disabilities, another huge step forward for Virginia. 

This is a good day.  Let’s speak out in favor of these forward thinking proposals to our legislators as you can be sure that those who unfortunately will lose their current jobs will be speaking to their legislators early and often.  That is their right and what anyone losing a job might do, but Virginia’s system of care for children and adolescents and for people with intellectual disabilities must be designed with the best interests of the people served in mind, not the best interests of state employees.  I congratulate Governor Kaine on his proposals for these institutional settings and I hope that like minded citizens will do the same and contact their legislators to express their support.

Maryland Created Database That Will Actually Save Lives, Unlike Virginia Which Created One That Only Creates Fear and Prejudice

http://www.washingtonpost.com/wp-dyn/content/article/2008/12/10/AR2008121001813.html

Virginia created a database of folks who have been committed to a psychiatric unit for any reason including a psychiatric reaction to a prescribed medical medication or temporary inability to care for self years ago and last year made it even more extensive by adding in folks who volunteer for hospitalization after being detained initially.  There is no evidence this database, created years before the massacre at Virginia Tech. ever saved any lives or ever will.   There is every reason to believe that it will  create prejudice and stigma  againtt Virginia citizens who have committed no crime and are no danger to anyone at all and that it will deter people from both seeking treatment for themselves and loved ones and from volunteering for hospitalization. 

Maryland on the other hand created a database that makes sense and will save lives–a database of all court orders around domestic violence that sheriffs can access at any time of day or night without going to a courthouse, impossible in the middle of the night, and which also allows them to print out orders in their patrol cars in case a perpetrator has torn up a protective or restraining order or an order was issued very recently.  In Maryland, men (and a few women) known to be violent and likely to be violent again are in a database that law enforcement can use in the moment to keep victims, including their children, safe and protected.  In Virginia, we have only succeeded in regressing the status of people who have psychiatric issues at any time in their lives and in increasing popular misconceptions that people with psychiatric histories are dangerous which has no scientific basis at all.  But hey, Virginia’s politicians had to show they were tough on….people with disabilities?  G-d forbid Virginia’s politicians showed any sign that they were tough on people who beat their wives and/or children, after all, the Department of Mental Health, Mental Retardation and Substance Abuse does not even bother to check if someone who is detained is in an abusive living situation, and they know best, right?  Oh, except for that unfortunate and preventable killing in Fairfax in which a woman in an abusive relationship was taken to her Community Services Board’s crisis center and no one there seemed to realize the danger of her situation so when she left and was attacked by her abusive boyfriend she killed him in self-defense and was found not guilty months later after being restored to competency because she was defending herself, not because she was mentally ill.  Do you know how innocent she must have been with a psychiatric label in a criminal court to actually be found not guilty?   Ordinary citizens figured it out, but not the trained clinicians at her community services board.  Virginia’s Department of Mental Health, Mental Retardation and Substance Abuse created a new pre-screening form this year.  A perfect opportunity to add screening for abuse to the process, instead they added a nonsensical and non-existent “level of insight” called “blaming” on their pre-screening form.  Sort of telling about their real attitude towards people with psychiatric disabilities, don’t you think?

Male Patient with Criminal History Rapes Female Patient In Bedroom ACROSS From His

http://www. tampabay.com/news/health/article928112.ece

Still no need for giving patients the option of single gender units Virginia?  You are building a new Western State Hospital, unfortunately, and you are not taking advantage of this opportunity to create a building that allows female and male patients to make the choice to live on single gender units.  Not units with a day room in the middle, but truly single gender units/wards is what is needed to keep (mostly) female patients safe.  Also in need of change is Virginia’s system of release of NGRI and lacking capacity forensic patients who in the present system can not be released unless they move up to units where they are mixed with civilly committed patients who have no criminal history.  You can say all you like that those who are convicted are no different than those who are not but I am not buying it, that is just stigmatizing all psychiatric patients and comes from working too long with forensic patients and with released convicts.  We need separate forensic units and we need to make it possible for NGRI folks (until we get rid of this out of date and harmful plea option which leads to more time locked up than simply pleading guilty or being convicted) to be released without putting other patients in danger of being raped in a hospital.

Legislation We Won’t See Proposed in the Virginia General Assembly Session

1. Police officers who hit pedestrians must  have their driving privileges suspended until they pass an eye test and a road test.

2.  Any bill to help people living at or below the Federal Poverty Level.

3.  Any bill to make hospitals in Virginia safer for patients who have to use them.

4.  Any bill to increase monitoring of institutions and group living situations.

5.  Any  increase in money for voluntary mental health services.

6.  Any bill outlawing prone restraints as other states in the U.S. have already enacted.

7.  Any bill outlawing prolonged seclusion of psychiatric patients.

8.  Any bill raising the absurd fees paid to lawyers appointed to represent indigent folks.

9.  Any bill to reintroduce parole into Virginia’s prison  system nor to add rehabilitation back into the equation of our “correctional” system.

10.  Any bill to bring Virginia’s Medicaid eligibility in line with that of civilized/oops I mean “socialist” states in the U.S.

11.  Any bill to require increased education and training for  psychiatric hospital  aides and dialysis technicians and folks who dispense medication to vulnerable people.

12.  Any bill that will help the “least among us”.  But we’re such a Christian state aren’t we?  Or are we? Matthew 25

Questions People Detained Under Virginia’s Mental Health Laws Will NOT Be Asked in the Uniform Pre-Screening

http://www.vsdvalliance.org/Resources/screeningguidesforhelpers.html

Screening for Domestic Violence
A Guide for Professionals

While inquiring about abuse may seem difficult at first, recognizing that identifying abuse is an important, legitimate, and potentially lifesaving task can help professionals overcome their initial hesitation. Professionals can help decrease a battered person’s potential discomfort by framing questions in ways that let her/him know that you take domestic violence seriously and that help is available.

Framing Questions

It may feel awkward to introduce the subject of abuse, particularly if there are no obvious indications a woman is being abused. The following are examples of ways you can introduce the issue.

  • “We know domestic violence is a very common problem. About 25% of women in this country are abused by their partners. Has that ever happened to you?”
  • “Because domestic violence is common in women’s lives, I make it a practice to ask women I see here about domestic violence.”
  • “I don’t know if this is a problem for you, but many of the women I see here are dealing with abusive relationships. Some are too afraid or uncomfortable to bring it up themselves, so I’ve started asking about it routinely.”
  • “Some of the lesbians and gay men we see here are hurt by their partners. Does your partner ever try to hurt you?”

Direct Questions

However you initially raise the issue of domestic violence, it is important to include direct and specific questions.

  • “Did someone hit you? Who was it? Was it your partner?”
  • “Has your partner or ex-partner ever hit you or physically threatened to hurt you or someone close to you?”
  • “Does your partner ever try to control you by threatening to hurt you or your family?”
  • “Has your partner ever forced you to have sex when you didn’t want to? Has your partner ever refused to practice safe sex?”
  • “Does your partner frequently belittle you, insult you, and blame you?”
  • “Has he/she ever tried to restrict your freedom or keep you from doing things that were important to you (like going to school, working, seeing your friends or family).”
  • “Do you feel controlled or isolated by your partner?”
  • “Do you ever feel afraid of your partner? Do you feel you are in danger? Is it safe for you to go home?”
  • “Is your partner jealous? Does he/she frequently accuse you of infidelity?”

Indirect Questions

In some settings, it may be appropriate to start the inquiry with an indirect question before proceeding to more direct questions. The following are some examples of this approach.

  • “Have you been under any stress lately? Are you having any problems with your partner? Do you ever argue or fight? Do the fights ever become physical? Are you ever afraid? Have you ever gotten hurt?”
  • “You mentioned that your partner loses his temper with the children. Can you tell me more about that? Has he ever hit or threatened to physically harm you or the children?”
  • “How are things going in your relationship/marriage? All couples argue sometimes. Are you having fights? Do you fight physically?”
  • “You mentioned that your partner uses alcohol/drugs. How does he/she act when intoxicated? Does your partner’s behavior ever frighten you? Does he/she become violent?”
  • “Like all couples, gay couples have various ways of resolving their conflicts. How do you and your partner deal with conflicts? What happens when you disagree? What happens when your partner doesn’t get his/her way?”

If the person does not acknowledge abuse:

If she/he says that abuse is not occurring but you are still concerned about abused, it is appropriate to offer resources and support. Voice your concerns. She/he may feel comfortable listening without directly acknowledging the abuse. In this case it is still helpful to offer some information about abuse, provide a referral sheet or phone numbers, and to encourage her/him to contact resources in the community.

This document was adapted from the publication entitled, “Improving the Health Care System’s Response to Domestic Violence: A Resource Manual for Health Care Providers,” produced by the Family Violence Prevention Fund in collaboration with the Pennsylvania Coalition Against Domestic Violence. Written by Carole Warshaw, M.D. and Anne L. Ganley, Ph.D., with contributions by Patricia Salber, M.D.

Apologies For Slow Posting These Days

Recuperation from kidney transplant surgery turns out to be a lot more involved and interesting than I would have predicted.  Of course I tried not to think about the recuperation process at all ahead of time which would account for how unprepared I was.   No driving for 4 to 6 weeks is much more of a hassle than I would have predicted.  Also following the rules for being home bound and therefore being entitled to a whole 2 short and 2 hour late visits a week from  a home health nurse to take my blood to be tested means I can only legitimately go out for church, a haircut and doctor appointments and perhaps shopping if driven but that’s not really clear, only a suggestion by the home health nurse.  She is of course not “late” but lives far out and could not leave on time to get here when I am scheduled to take my medication and has other transplant patients and the home health agency could not possibly arrange things so that I was not the one who is always forced to wait 2 hours twice a week to take my medications and even have my cup of coffee.  Which pushes my whole medication regime back 2 hours twice a week when we were told in the hospital it was supposed to be strictly 12 hours apart but it is not lateness, I was firmly told I could not call it lateness, it is just the way things are.  Today i would have been late for  a clinic appointment if I had not cancelled it because my ride cancelled because even though I told her I had the appointment she did not come any earlier unless you count 7 minutes earlier.  I feel so special.  Not.  But perhaps it is the fact that she told me “government can’t do everything” when I said it didn’t make sense that I am not allowed to drive and not allowed to lift more than 5 pounds and yet still not considered eligible for home health help with shopping.  She said this is the role of churches, not government.  So if you are an atheist, better join a church anyway in case you ever need help after surgery.  Or maybe complain to the government that people should not be forced to join a church to get Medicare home health services they need when money is being thrown at Wall Street to buy banks and give bonuses to executives?  And how could any church support someone in that way long term?  Are all folks who need intensive home health services supposed to be forced onto Medicaid and give up all their assets and right to a choice of decent doctors in order to survive?  I think I unfortunately know that the answer to that question is “yes.” 

I know, I should be very grateful and I am.  I have a perfect kidney.  Everything is working.  I can eat vegetables and fruit!  (And I am :) ).  But I can not help thinking of those forced to deal with home health every day of their lives and want to scream and than want to join them in their efforts to improve things.  Anyone hiring a home health activist with a new kidney and need for expensive health insurance coverage? :) Because it seems one of my medications costs 1,000 a month and I am in the doughnut hole, that lovely hole congress put in instead of allowing Medicare to negotiate drug prices.  Luckily I only take it for 2 and a half months, unluckily if I hit catastrophic coverage it will go back to zero come January 1st and I will start all over and fall into the doughnut hole again. 

I have this silly idea that after Obama is elected we might actually talk about these issues.  I’ve been fooled before, I thought Clinton would give people on disability the right to keep their Medicare if they returned to work, a win/win if anything is.  I hope I am not fooled again but I have already voted absentee early in person and if anyone might do this it is Obama.

Dialysis Companies Have Figured It Out, Why Not Community Service Boards?

Dialysis companies pay into a fund that then pays Medigap premiums for those dialysis patients who can’t afford to pay for it themselves therefore ensuring they will get the 20% co-pay they might otherwise have to eat or wait years to get paid.  Medigap for psychiatric care is an even better deal since the co-pay for psychiatric services under Medicare is still 50% instead of 80% and won’t reach 80% parity for several years.  Some states have figured this out and pay the Medigap premiums of citizens with disabilities who would not otherwise be able to afford them thus saving the state money when services the state provides anyway are reimbursed at 100% instead of 50%.  But not Virginia.  I brought this up twice at Commission on Mental Health Law Reform Commission meetings but I have not heard a word about follow up in the Access to Services group that is now working in secret with members chosen for their likelihood of avoiding conflict and all the troublemakers who disagreed with the majority openly pushed out of discussions in all the committees whose names have not even been released, let alone their membership lists.  Trouble with avoiding “trouble-makers”?  You avoid fresh and different ideas at the same time and you don’t have all the ideas and facts you need to come up with the best proposals.  But never mind, consensus and going along to get along is all that really matters.  Back to the issue at hand.

We have many clients of Community Service Boards in Virginia who have Medicare coverage but do not have Medigap coverage to pay for the other 50% not paid for by Medicare.   There are a few things the state could do about this that would help a lot in ensuring more services and more money for services.  One would be to offer Medigap coverage from a state insurer to people under 65 on disability or to reimburse an existing insurer for doing it.  Some folks could afford to pay their own premiums and might leave the CSB system altogether for private care if they had full insurance coverage thus saving the state money.  For those who could not afford the premium themselves, it would still save the state money to pay the premium for them so that services would be covered at 100% of Medicare rates.  Medicare rates for psychotherapy and for medication management are much higher than Medicaid rates and unlike Virginia’s Medicaid reimbursement for psychotherapy have actually pretty much kept pace with inflation.  So instead of 20 something dollars per session a CSB could receive $65 a session with a licensed social worker and much more for a licensed psychiatrist or psychologist.  CSB’s already employ LCSW’s and psychiatrists but do not collect that kind of money for their services at all. 

Of course Medicare will not pay for day warehousing, oops, I mean clubhouses nor for Persistent Annoying Community Treatment teams, oops, I mean PACT teams, CSB’s would have to provide individualized treatment by individual providers instead but hey, guess what?  There is evidence that psychotherapy and medication management on an individualized basis is the gold standard of treatment for “serious mental illness”  just like it always was, propaganda from PACT and MOT supporters notwithstanding. 

So hey, could we possibly look at doing something that would pay for itself while increasing reimbursement for and availability of mental health treatment to Virginians who want and need it?  Nah.  We have to do what the people in charge want, whatever that is, but it seems to be to pay for treatment by forcing it on both citizens and CSB’s even if coerced treatment is both less effective and less attractive to everyone involved, patients and providers both.  Let’s not do anything that makes common sense and pleases users of services, that would be……..wrong?  What could dialysis companies that struggle against a lack of rising reimbursement know about staying in business anyway?   They make a profit but that couldn’t be because they take a sensible approach to Medicare and Medigap coverage for their patients?  Nah.  Couldn’t be.

Why Doesn’t the Richmond Times Dispatch Know How Many State Mental Hospitals Virginia Has?

And why when a comment is posted pointing out their mistake is it removed after being posted initially.  The article, here: http://www.inrich.com/cva/ric/search.apx.-content-articles-RTD-2008-09-22-0255.html was not written clearly in the first place, referring to some event somewhere that 10 advocates and officials spoke at but never specifying when and where and what group they are, and the article says there are only 4 state mental hospitals in Virginia when in fact there are 8, 10if you count the post sentence sex offender facility and Piedmont Geriatric Facility.   See here:  (not hard to find you know): http://www.dmhmrsas.virginia.gov/SVC-StateFacilities.htm

As to the article’s premise, that the solution is more money to fund mental health law regression rather than to repeal the very expensive and fear rather than evidence based regressive mental health laws passed this year, I say absolutely not.  Repeal the legislation and only then protect mental health from cuts and only if there is more accountability from Community Service Boards to the people they serve and the state that people are being offered services they can use and want rather than what is available and what others want for them.  It is a sad fact that it is easier to get hugely expensive Program of “Assertive” (Intrusive) Community Treatment team services at most Virginia Community Service Boards than it is to get inexpensive counseling or psychotherapy.  The rate of reimbursement for counseling has not been raised in 20 years (actual dollars, not adjusted for inflation) and we have more CSB clients on waiting lists for counseling than any other service and still the VACSB does not even request a raise in the reimbursement rate because they do not represent the interests and wishes of the people they serve but rather their own interests and wishes.

Massive Resistance (closing of 2 C’ville schools by Governor rather than allow integration) this Friday

Massive Resistance Remembrance: 4pm September 19 at the Free Speech wall on the east end of the Downtown Mall.

Senator Shelby (R, Alabama) To Activists with Disabilities: “I don’t help people who can’t help themselves.”!

From Ms. Cripchick’s weblog via an ADAPT press release, sadly Representative Barney Frank (D, Massachusetts) refused to speak to ADAPT and has turned his back on promises to ADAPT to help fund independent affordable housing for people with disabilities.  As noted in a previous post on the protest, Senator Obama’s campaign accepted ADAPT’s housing platform. 

50 Arrested as ADAPT Takes Affordable, Accessible Housing Crisis to Congress

September 17, 2008 <!–cripchick–>

ADAPT PRESS RELEASE:

Washington, D.C.—From their base at “DUH City”, groups of ADAPT activists fanned out on the Hill to hit congressional leaders who have responsibility to help solve the housing crisis for low income people with disabilities. Visits to the offices of Rep. Barney Frank (D, MA), a longtime leader on housing issues, and Senators Chris Dodd (D, CT) and Richard Shelby (R, AL), the Chair and ranking Member of the Senate Committee on Banking, Housing and Urban Affairs resulted in a total of 50 arrests.

“Our first stop was to see Rep. Barney Frank,” said Diane Coleman of ADAPT in Rochester, New York. “ADAPT has been in talks with him over the past year, and early on he told us in no uncertain terms that he could get 500 housing vouchers from HUD that would be targeted to free people with disabilities who live in nursing homes and other institutions. He repeated that promise for months, and we kept trusting his word, and then one day he suddenly says he can’t help us. We were also working with him to get funding that pays for segregated housing redirected to support integrated housing and more vouchers. Sen. Frank arranged a hearing on this funding, and not only did he not invite any people with disabilities to testify, he didn’t even notify us about the hearing. So, today, we decided to confront him on his broken promises and bad faith.”

Shortly after 13 ADAPT members entered Franks’ office, he ordered staff to have them arrested, refusing to even discuss the ADAPT concerns, or strategies to address the housing crisis for low income people with disabilities trapped in institutions for lack of affordable, accessible, integrated housing.

ADAPT went to the offices of Dodd and Shelby because HUD and housing fall under the purview of their committee. Sen. Shelby declined to work with ADAPT saying, “I don’t help people who can’t help themselves.” There were 19 arrests made in Shelby’s office. An aide to Sen. Dodd spoke with ADAPT, but declined to put her remarks on paper after indicating she might be willing to do so. ADAPT continued to wait for the written statement, and eventually nearly 25 people were arrested.

“The TV is full of news about the bank crisis, and the mortgage crisis, and the need for candidates to appeal to middle income people,” said Cassie James, Philadelphia ADAPT organizer. “Meanwhile, people who live on disability benefits, and people who are trapped in nursing homes because of no housing are being held hostage while the government bails everyone else out. Rent has gone up so much, it’s higher than many monthly disability benefits. Not only do us younger people with disabilities need affordable, accessible housing, older people need it, too. This is a crisis, and we need help to solve it.”

ADAPT has been in D.C. since September 13, erecting DUH City, a tent city, on the plaza outside HUD headquarters to bring attention to the situation of the people who have been ignored in this election year- low income people with disabilities. The crises with the economy and housing extend well beyond the middle class, but the Presidential candidates and their parties have seemingly forgotten that fact. Not so, ADAPT.

Obama Accepts ADAPT’s Housing Platform, McCain Refuses and ADAPT Members Are Arrested

8 ADAPT Activists Arrested at McCain Campaign Headquarters

Adapt_logo_blue_2 This update from Bob Kafka, National Organizer of ADAPT (3:58 PM, ET):

Civil Rights done in a different way. 500 ADAPT activists have set up DUH City on the HUD Plaza in DC. WITHOUT A PLACE TO LIVE IT IS HARD TO GET A JOB. Low income people with disabilities are about 15 percent of medium income. ADAPT has developed a housing platform that they want Obama and McCain to endorse.

As I write this ADAPT activists are being arrested in Sen McCain’s office as he refused to accept the platform.  Earlier in the day DNC officials accepted the ADAPT Platform.

8 arrested in McCain Presidential Campaign Headquarters, 3 outside the Headquarters.

INCLUSION, INTEGRATION INDEPENDENCE

Community First!

The ADAPT Community
www.duhcity.org

Outpatient Commitment Is About Money, Not Public Safety or “Caring Coercion”

Proponents of outpatient commitment (forced drugging and so called “treatment” in their own homes of folks labelled with psychiatric diagnoses) usually use one of two arguments or both to persuade others that it is a good idea.  The argument most often used by E. Fuller Torrey and his Treatment Advocacy Center is that people with mental illness are dangerous ticking time bombs if not force medicated in their own homes who will kill you or your child or your sister on the street if you don’t pass laws to force drugs down their throats NOW!  The argument others use and that the Treatment Advocacy Center also uses sometimes is that not forcing psychiatric drugging and “treatment” on people in their own homes is tantamount to neglect and shows a lack of caring or concern for people with mental illness.  And if the drugs didn’t shorten lives by 25 years and actually worked as they claim rather than by causing brain damage and if we as a society had decided that we were going to force drug everyone with an illness in their own home if they didn’t take medicine voluntarily, well I”d move to another country but they might have more of an argument than they do now. 

But the fact is the push for outpatient commitment in Virginia and elsewhere is not about public safety nor about “caring coercion”.  It is all about money.  Money that taxpayers and legislators and Governors do not want to spend on mental health services in the community but will have to spend if legislation is passed that makes it even easier to force a citizen of Virginia into forced outpatient “treatment”.  Once there is a court order mandating treatment, there is no way out for the legislators and the Governor.  The money will have to be found to “treat” (force drug and monitor) each and every person ordered into outpatient commitment in Virginia.  If the psychiatrists to prescribe aren’t there they will have to be hired and if there is no money in the state pharmacy to pay for the drugs it will have to be found because otherwise state employees and their bosses will find themselves in contempt of court.  Of course the money for outpatient forced treatment will only be forced out of the legislature and the Governor after every last bit of money for voluntary mental health services in the community has been squeezed out of Community Service Board budgets and there is no more voluntary care left in the state for those dependent on the public system of mental health if we can even call it a system.  But no matter right?  It’s not as if self-determination, empowerment, choice, recovery or resilience are part of the Department of Mental Health and Mental Retardation and Substance Abuse’s Mission statement and Vision and Comprehensive Plan and Transformation plan and Olmstead Plan or anything….oh wait, they are.

Talk the talk.  Walk the walk.  You can do it.  We can do it.  Yes we can.

Screen Psychiatric Staff For Patients’ Sakes

All this talk of screening the population for mental illness these days in Virginia and elsewhere and NO talk about screening the folks who work in mental health facilities such as psychiatric units and hospitals for attitude problems, anti-social behavior or histories of founded abuse or criminal records that indicate a risk to patients.  In fact Virginia just made it easier to hire staff with a history of conviction for assault and battery this past legislative session and the one 2 years ago even though past violence has always been the best predictor of future violence. 
Screening for professionals who just don’t give a darn or who are empathy challenged but have no criminal nor documented abuse history is more work, but aren’t people who are completely at the mercy of staff in psychiatric institutions worth it?  We need to do a better job of screening out folks who don’t like people with mental illness who end up commenting on newspaper stories or in blogs about how horrible their mental health patients are to the public and those who lack the basic empathy of a head of lettuce that you don’t tell someone who just tried to kill herself that she wasn’t serious enough and to tell other staff to be mean to her.  A young woman died, her parents have lost their young daughter, at least in Australia there is a public coroner’s inquest, does that ever happen in Virginia or elsewhere in the United States when a psychiatric patient dies?  We have to develop better and more rigorous screening of those who work with people in psychiatric institutions in this country.  Our people are being traumatized for life and some of them are dying. 
Hanging victim afraid in hospital
Email Printer friendly version Normal font Large font Daughter wrote letter … John and Judith Chapman, inset, Lynne Murphy arrives at the court.
 
Advertisement
Geesche Jacobsen
August 19, 2008
 
THE previous time Emily Chapman tried to hang herself in the psychiatric unit, she pressed the emergency button, and was saved.
 
A night nurse, Margot Gattenby, then allegedly made her crawl back to her bed and refused to help her up.
 
Later, the nurse allegedly said loudly: “She’s just an attention seeker. If she was serious, she would not have pressed the emergency button.” Ms Chapman, who heard the comment, told another nurse: “I will never press that button again.”
 
The next time Emily Chapman hanged herself in the Cumberland Hospital psychiatric unit she did not press the emergency button. She died the following day.
 
The 20-year-old had been admitted in December 2005 after a suicide attempt. She had suffered chronic fatigue syndrome since she was 13, and had been admitted to hospital nine times with pancreatitis, her father, John Chapman, told Glebe Coroner’s Court yesterday.
 
She had told staff she was afraid of the fixtures in the bathroom, felt unsafe and had a desire to hang or strangle herself.
 
Dr Chapman told the court his daughter had written a letter complaining about Ms Gattenby but had not sent it for fear of retribution. She wrote of being deliberately kept awake, of being denied her medication, and being told to “watch the television” when she was feeling anxious.
 
Ms Gattenby also allegedly told her she had “run out of compassion” for her, and that she was not really ill.
 
“All of these experiences have been traumatic and damaging above and beyond the illness that I’m already suffering,” Ms Chapman wrote. “I trust that you will take this matter seriously, address this inexcusable behaviour and attitude, and act to change the situation for the good of all the patients in the ward.”
 
Another nurse, Lynne Murphy, who became close to Ms Chapman, resigned in protest at the “patient abuse” on the ward. Ms Chapman told her she had been sexually assaulted in other hospitals but this was not followed up and she was left alone with a male nurse at night.
 
Ms Murphy said Ms Gattenby told her not to reward Ms Chapman for her suicide attempt by giving her attention. “You have to decide whether long-term behavioural change is your goal or preventing suicide … In order to prevent suicide, you have to show empathy and compassion,” Ms Murphy told the court.
 
The inquest continues.
 

Good Idea to Make It Easier to Commit Folks To Psychiatric Units for their Own Physical and Financial Safety Virginia…….Or Not?

Florida- — Two patients in Tampa General Hospital’s psychiatric unit hanged themselves with bedsheets last month two days apart, according to public records.

Delaware-  ”Possible misappropriation of money from patients’ accounts by staff at the Delaware Psychiatric Center has prompted one state lawmaker to request yet another federal investigation of the trouble-plagued state hospital.
It’s the Sopranos. They’ve got organized crime running the place,” said Rep. Gregory F. Lavelle, R-Sharpley, who was reacting to the findings of a special investigation released last week by Delaware Auditor R. Thomas Wagner Jr.”

Connecticut- “Angered by problems such as rising costs and the use of potentially dangerous restraints at the state’s psychiatric hospital for children, legislators are planning an investigation into the performance of the Department of Children and Families.”

Oregon State Senate President Describes Sodomy of State Hospital Patient by a Custodian as Just a “Setback”

The woman was in state “care” in Oregon’s state hospital facility in Portland and a custodian who worked there was able to have sex with her 4 times in a year and only stopped and arrested because a co-worker walked in on him but the Senator says setbacks are to be “expected” and will be fixed by new buildings?  We have investigators saying they do not believe force was used but a staff person does not need to use force to coerce any psychiatric hospital patient into sex she or does not want and that is rape whether it is legally charged as such or not.  Patients in psychiatric hospitals are told from the day they arrive to obey all staff all the time and are punished (treated/intervened, right) if they do not.  They are most often heavily drugged and unable to exercise informed consent.  You don’t have to hold a gun to someone’s head to commit rape in the outside world and you most definitely do not in a state hospital when the victim is a patient.  But this is just a to be expected “set back” and we should expect and by implication accept, more rapes of patients in Oregon’s state hospital system.  Well I’m sorry but I do not find this acceptable and I never will.  And I keep wondering when anyone in the leadership of this country’s public mental health system is going to stand up for the right to have single gender environments for patients in psychiatric hospitals.  I guess I keep wondering because I am an unrealistic optimist who thinks someone in the system with power somewhere must give a damn.

Politicizing the Work of the Commission on Mental Health Law Reform by Selective Release of Information and Reports Paid for by Taxpayers

The research and all the meetings of the taskforces of the Supreme Court’s Commission on Mental Health Law Reform were paid for by the taxpayers of Virginia.  The General Assembly passed a law last session directing itself to pay attention to the work of the Commission on Mental Health Law Reform over the coming year.  This was a bipartisan bill.  Yet the work of the Commission appears to be anything but non-partisan, fair or unbiased.  For example, the report of the Commitment Taskforce which was to include all points of view and which is clearly finished since pages from it have been released to a new highly biased committee formed to do what the Commitment Taskforce would not and yet the full report has not been released even to members of the Taskforce that worked on it let alone the general public.  My best guess is that it will be released after the NEXT legislative session to ensure that opposing views are not in print before the legislature meets and so that the legislature can have the mistaken impression once again that there was any unanimity on recommendations by the Commitment Taskforce of the Commission. 

The research done by the Commission, also paid for by taxpayers by a grant from the Department of Mental Health, MR and SA but without the approval of the state’s Mental Health Planning Council who is supposed to advise on such grants, is similarly being controlled to suit the agenda of one side and not the other.  There was a full report of research on commitment in Virginia on the Supreme Court’s website in April and May and June of this year but you will see it is now gone with no trace of ever being there after I raised questions about its accuracy.  The public and the General Assembly which asked for research is being deprived of access to it.  I suspect again this report will only show up in selected pages and with the demand that this public document not be re-released to the public or that it will be published again once the next General Assembly session is over and the legislature has made decisions based on selective and biased data. 

I may be naive, but to me a promise is a promise.  I was promised when I put in all those hours on the Commitment Taskforce that the report would include all points of view and that it would be released last January.  We are close to August and all that has been published is papers and presentations on one very biased side of the issues, including on our own Department of Mental Health etc.’s website. 

Politics is politics and if one wants to enter the political arena one is free to do so, but it is unseemly to use public funds for political purposes and pretend one is doing otherwise.   My opinion.

The Civil Rights of Citizens With Psychiatric Labels Is A Political Issue

Maybe it’s the fact that those who want to erode our rights are not confined to one political party or another or that our major win, the ADA, was accomplished through a bipartisan effort, but it seems that our civil rights is not seen as a political issue by many folks.  Whether it is Peace and Justice folks or state organizers on all kinds of issues or individuals, it is the rare person not involved in disability rights who gets it that our civil rights are a political issue, not a personal issue nor a charity issue nor irrelevant to the rest of society and their civil rights.  I do not know what we can do to change this other than to keep being political whether other folks recognize it or not, but it is disheartening.  On the bright side, there is a disability forum for both Presidential candidates this Saturday, which leads me to think that politicians think disability, um, is a political (?) issue……. :)

Spinning the Numbers In Research Study on Commitment in Virginia

Richard Bonnie states in his Power Point Presentation on the DMHMRSAS website http://www.dmhmrsas.virginia.gov/OMH-MHReform/080604Bonnie.pdf on page 11 that about 15% of cases are dismissed.  This is what we call spin in polite circles.  In fact only 9% of cases were dismissed in the research paid for by taxpayers and carried out by researchers at UVA with the cooperation of folks involved in the system all over the Commonwealth.  This research belongs to the taxpayers, the public and stakeholders no matter what Richard Bonnie states on his presentation about needing his permission to use the statistics on a state agency’s website of research paid for and carried out with public money and taking the time of public employees.  In reality, Mr. Bonnie made a choice to eliminate all long term re-commitments from the statistics, thus bringing the percentage up from 9% released to 15%.  Contrary to Mr. Bonnie’s opinions on the matter, my opinion is that the liberty interest and the repercussions of recommittments are far direr and important than those of initial short term commitments.  We are talking about citizens who are committed for 6 months at a time and then re-committed and who practically never win release at their follow up hearings.  We are talking about the citizens who lose years of their lives to being warehoused in state hospitals.  We are talking about the most vulnerable to abuse, rights violations and isolation and despair and disconnection from their families and community that may never be repaired.

*One in a series of deconstructing the interpretations of research paid for by the taxpayers of Virginia by the Commission on Mental Health Law Reform.*

Psychiatric Units and Hospitals Judged on Safety Not Competence, Alone Among Medical Specialties

But the 31 ways in which the facility is assessed are all related to patient safety, not to competence of care—whether there were programs to reduce infections, prevent falls, conduct a “timeout” before starting a procedure, and so on. And the only question with specific relevance to psychiatry is whether patients at risk for suicide were identified.”

How can the state of Virginia make it so much easier to involuntarily admit its citizens to units and hospitals about which there is a dearth to no information on competence of care?  Is the disrespect for the humanity and needs of citizens with psychiatric labels that profound that the legislature and the Governor and everyone who went along with these new regressive laws including DMHMRSAS and the VACSB think the competence of FORCED treatment is not a matter of concern? 

And where is the measure of competence our our Community Service Boards which will implement outpatient commitment under the new laws?  How can the state commit citizens to programs of whose quality they have no real evidence?

Vote For Number 4 But Then Follow Through By Choosing What You Really Want and Calling Your Legislator, Mental Health Is NOT a “Negative” Term, Nor is Disability a “Negative” Experience

Public comment on DMHMRSAS name change by July 31st 

DMHMRSAS has had its current name for more than 20 years. During that time, many states have updated their agencies’ names to reflect current values and perceptions and to address feelings about certain language and biases. Also, during that time, many, many people, including legislators and advocates, have complained about the Department’s name being unwieldy and far too long. Thus, the time for giving this department a new, more current name has arrived.

The Department’s partners statewide and general public are invited to review the options below and respond with a preferred choice by July 31, 2008. As you review the options below, please keep in mind the goals of the name change:

  • To shorten the current name and acronym,
  • To consistently use positive terms related to the impact of the Department’s services, rather than listing disabilities or conditions addressed by those services, and
  • To use terms that are more reflective of the Department’s values and mission statement and more inclusive of current programs (versus exclusive ‘silo’ terms) and any future additions to the services the Department provides and the populations served.

These choices are listed in no preferential order, only alphabetically:

  • Department of Behavioral and Developmental Services (DBDS)
  • Department of Behavioral Health and Supportive Services (DBHSS)
  • Department of Behavioral and Supportive Services (DBSS)
  • Department of Supportive and Recovery Services (DSRS)

 

Please review the options above and click here to respond with a preferred choice or an alternative by July 31, 2008.

 

Protections for People Subject to Involuntary In or Outpatient Commitment Proposal I Wrote Last Year

Alison Hymes, member, Commitment Taskforce, November 15, 2007

 

Summary of Protection of Subjects of Involuntary Commitment Issues (Draft)

1.. There is a clear need for independent medical monitoring and follow up of subjects of commitment whose treatment includes psychotropic medication. (Not just neuroleptics, but all psychotropics including depakote, Tegretol, lithium and others.)
 This could be a G.P. or Internist hired by the CSB overseeing the
outpatient commitment to monitor all clients or it could be contracted out, but it is necessary to prevent medical harm and permanent injury. (Psychiatrists in CSB’s do not have the time to monitor medical health beyond cursory screenings if that, they will not have more time in the future if Kendra’s Law is passed.)

 

 2.. No one who is involuntarily placed in a hospital or in outpatient treatment should be forced to pay out of his or her own money for his or her unwanted treatment. If the state wants a person treated against their will, the state needs to pay for it.  Likewise all drugs that a person takes under a judicial authorization of treatment must be paid for by the state or
CSB,not the person who does not want to take them.  To do otherwise is to levy a civil fine on an individual who has not committed a crime or a tort in my opinion.  (The response by members of the Access Taskforce that this could lead to people preferring involuntary treatment to voluntary shows a clear lack of insight into the nature and effects of coercion and force seems based in a view of people with mental illness and their real lives that I can not even fathom.)

 

3.. The Medicare days of a subject of involuntary commitment (limited to lifetime of 180) should not be used for his or her hospitalization leaving him or her with no days left for voluntary hospitalization in a hospital of his or her choice in the future.
 

4.. Subjects of involuntary inpatient commitment and TDO’s should have the following protections as a matter of course:

A.   The right to have whomever they choose notified of their whereabouts at all times including when they are transferred to a different facility.
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 B.   Protection from eviction from apartments, nursing homes, Adult Living
 Facilities and group homes.

 C.   Protection from default judgments

 D.   Protection of their credit rating through requiring they be helped to access any bills they pay each month such as credit card and utility bills and given the chance to pay them from the hospital or other facility.

 E.   Freedom from exposure to unnecessary risks: The right not to be housed with NGRI’s with an arrest for a crime of violence, and the right to be allowed to choose to be housed in a single sex unit.  (The current human rights regulations do not even begin to address these concerns and have never been interpreted to do so.  This would need to be a new right/protection/statute.    The concern about NGRI’s with a record of arrest for a crime of violence and their need for a less restrictive environment is laudable but could be accomplished without endangering people who have not been arrested for a crime of violence by having separate step-down units for NGRI’s.  People who have been civilly committed are vulnerable to exploitation and violence and experience demoralization when they discover they are in the same unit as someone arrested for a violent crime.  Both women and men with mental illness are more likely than not to have a history of abuse.  For some, the safety of a single sex unit is necessary for their recovery and avoidance of re-traumatization.)

5.. Persons subject to commitment should have the right to have their own private provider testify by phone, deposition or fax at their commitment hearing.

 6.. The use of handcuffs shackles and police vehicles should be a last resort, not the first, in transporting people subject to commitment.  No one subject to commitment should be strip searched by a police officer for any reason.

(Forced) Treatment Advocacy Center Believes Drugs Are Housing Apparently–Reality Testing Anyone?

The (forced) (drugs only) Treatment Advocacy Center has a post on their blog that suggests they are a little confused about what housing is and what drugs/medications are.  I feel a need to help them gain insight for their own good.  Okay now folks, drugs and medications are pills or sometimes injections or liquids that may or may not be helpful to a person with a psychiatric disability depending on the person, the cause of their disability, the accuracy of their diagnosis and the side effect profile weighed against the drugs effects.

Housing is a place to live.  Somewhere a person can sleep in their own bed and cook their own meals, have their own bathroom and running water, hopefully at a rent they can afford. 

These two things are not the same.  A homeless person on medication is still a homeless person.  A person who has housing is no longer homeless.  Medication does not create housing.  Housing on the other hand may decrease the need for medication.

I am concerned about the level of insight of the writers of the Treatment Advocacy Center blog.  They seem to conflate these two very different things a lot.  Insight oriented psychotherapy might be helpful if they are amenable to treatment.

ROFL>

Disabilities Are Not “Behaviors”, Stop the Spread of the Term “Behavioral Health” and Ask Folks With Disabilities What Term THEY Want Used

People with intellectual disabilities and their allies succeeded this year in getting the term mentally retarded changed to intellectual disabilities in the Virginia General Assembly this year. The General Assembly chose to respect their preference for how they wished to be described. People with psychiatric disabilities in Virginia on the other hand are not being consulted by anyone as the insulting and inaccurate term “behavioral health” is increasingly being substituted for mental health across the Commonwealth. Why am I not surprised that once again people with psychiatric disabilities are being dis-empowered, silenced and ignored as to their own preferences by the Department of Mental Health, Mental Retardation/Intellectual Disabilities and Substance Abuse? Even though their vision statement and all their public talks speak to recovery and empowerment and self-determination, once again their actions completely contradict their talk.

Why is it even legal to change the names of programs and departments without legislative action for one disability but not another? I have heard the very lame and off point explanation that a more inclusive term was wanted for people with substance abuse, intellectual disabilities and mental health disabilities so the state (and the public?) could lump, oh excuse me, consider them all in one term. The explanation makes what is happening even worse. People with substance abuse problems are not people with mental illness unless they have co-occurring disorders and vice versa. People with mental health disabilities are not intellectually disabled except for the small co-occurring part of the population.

But hey, don’t consult us, lump us all in together and call our real disabilities “behavioral” as if we were misbehaving and if we just behaved we wouldn’t have a disability. Thanks DMHMRSAS and all the Community Service Boards who are ignoring and not even asking for the opinion of people with mental health disabilities, we really appreciate being ignored and silenced once again by the folks who earn their living off of our disabilities. Not.

Politically Correct Prejudice and Bigotry

It’s very amusing to me that Sally Satel entitled her book before last P.C. MD: How Political Correctness Is Corrupting Medicine because Satel is in so many ways the epitome of psychiatric political correctness. She makes fun of the idea that psychiatric survivors have anything to say or offer to the psychiatric system–this is very politically correct in the U.S. culture, particularly on the left/liberal side of the culture. Using psychiatric labels and diagnoses as put downs and jokes is commonplace and accepted without question as to its effect on people who have been so labelled in real life in left/liberal circles. Of course there are many who do the same on the right/neocon side and Bush himself called Sadaam a “madman” at one point and his DOJ isn’t exactly overly interested in civil rights violations against people in psychiatric institutions.

But I really get tired of hearing and reading people who consider themselves enlightened repeat the propaganda pushed by lobbyists who want to erode the minimal civil rights in existence for people with psychiatric labels in this country. These lobbyists deliberately and openly choose to push the idea that people with psychiatric labels are a threat to public safety, knowing the reality is that very few are and that you are much more likely to be killed by a non-diagnosed person than you ever are by someone with a psychiatric label and that folks with psychiatric labels are significantly over represented in the population of victims of violent crime. They also know that people with psychiatric labels are subject to discriminatory policing and prosecution, but ignore those facts to get well meaning folks upset about the fact that there are people with mental illness in our prisons and jails.

They also pretend that acts of violence can be both predicted and prevented by the psychiatric system knowing this is hogwash. The only way the psychiatric system can reliably predict future violence is from a history of past violence, age (young) and gender (male), and substance abuse, just like everybody else in our society and in fact, very few folks don’t have the common sense to predict that someone who has been violent in the past, is young, is male and abuses drugs is more likely to be violent in the future than someone who doesn’t fit any of those categories.

If it were any other marginalized group in our society being targeted as threats to public safety through propaganda (illegal immigrants have been targeted this way as well, but there has been pushback), liberals and the left would see through it and push back. But the prejudice and bigotry against people with psychiatric labels is so strong that even folks with psychiatric labels themselves will sometimes buy into the propaganda and lies being pushed by lobbyists who want to take away what little civil rights we have left.

It’s not politically incorrect to call someone crazy, a wingnut, or disturbed instead of bad, ignorant or obnoxious, it’s absolutely politically correct in our culture. And that’s a shame.

Integrating Myths and Harmful Stereotypes Into the Interpretation of the New Virginia Mental Health Laws

http://www.dmhmrsas.virginia.gov/OMH-MHReform/080604Abney.pdf

This presentation is on the DMHMRSAS website and was used to train CSB staff and others in Charlottesville last month and is supposed to be a reference for all in the commitment process.  One problem, the presentation presents as fact a common myth and damaging stereotype about people in a mental health crisis-that they all have refused “treatment” meaning drugs and/or have stopped taking medication.  Um, we have a lot of folks who enter the commitment process who were never in the mental health system before and were never prescribed any treatment before so how could they have stopped taking medication that was never prescribed to them?  How could someone have refused treatment in the past if they have no history of treatment?  Never heard of a first time psychiatric crisis DMHMRSAS?  What a great idea to make first time entrants into the mental health system feel as if they are screw ups and bad people who didn’t do the right thing and that’s why they are sick and if they don’t get that message they will get the message that this is what they are likely to do in the future.  I remember my parents and I getting that message when I was 26 years old.  It made me so angry I resolved never to be non-compliant with medication.  For a misdiagnosis, an illness I did not have, I faithfully took drugs for 12 years.  As a result of my determination to beat the stigmatizing stereotype I was taught in the mental health system, I ended up with kidney failure. 

You can not integrate recovery into the commitment process anymore than you can integrate sensitivity training into a gay bashing.  It’s a joke or more like a concept out of 1984’s dystopia.  You know what?  If DMHMRSAS doesn’t stop issuing non-reality based presentations, it’s going to get harder and harder to tell who is in the grip of groupthink and who is reality-based.  Seriously.

Mental Health Law Regression Will Disproportionately Hurt African American and Hispanic Citizens of Virginia

washingtonpost.com
Racial Disparities Found in Pinpointing Mental Illness

By Shankar Vedantam
Washington Post Staff Writer
Tuesday, June 28, 2005; A01

John Zeber recently examined one of the nation’s largest databases of psychiatric cases to evaluate how doctors diagnose schizophrenia, a disorder that often portends years of powerful brain-altering drugs, social ostracism and forced hospitalizations.
Although schizophrenia has been shown to affect all ethnic groups at the same rate, the scientist found that blacks in the United States were more than four times as likely to be diagnosed with the disorder as whites. Hispanics were more than three times as likely to be diagnosed as whites.
Zeber, who studies quality, cost and access issues for the U.S. Department of Veterans Affairs, found that differences in wealth, drug addiction and other variables could not explain the disparity in diagnoses: “The only factor that was truly important was race.”
The analysis of 134,523 mentally ill patients in a VA registry is by far the largest national sample to show broad ethnic disparities in the diagnosis of serious mental disorders in the United States.
The data confirm the fears of experts who have warned for years that minorities are more likely to be misdiagnosed as having serious psychiatric problems. “Bias is a very real issue,” said Francis Lu, a psychiatrist at the University of California at San Francisco. “We don’t talk about it — it’s upsetting. We see ourselves as unbiased and rational and scientific.”
As the ranks of America’s patients and doctors become more diverse, psychiatrists such as Lu are spearheading a movement to address the problem. Clinicians need to be trained in “cultural competence,” they say, to prevent misdiagnosis and harm.
Psychiatrist Heather Hall, a colleague of Lu’s, said she had to correct the diagnoses of about 40 minorities over a two-year period. She estimated that one in 10 patients referred to her came with a misdiagnosis such as schizophrenia, a disorder characterized by social withdrawal, communication problems, and psychotic symptoms such as delusions and hallucinations.

Read the rest of this article HERE.

University of Virginia Medical School’s Grade on AMSA ScoreCard

UVA received a “C” for being In Process of revising its policies but its existing policies would not have passed if one looks at the scorecard.  In all fairness, all other Virginia medical schools that were graded got an “F”.  To me personally, this helps me to understand why we can’t get psychiatric drugs added to the Medicaid formulary in Virginia and why our Attorney General has failed to sue pharmaceutical companies as so many other states have for big settlements Virginia could surely use over the issue of off-label marketing of drugs, especially psychiatric drugs.  Virginia is not rolling in money for health care or anything else, what else explains the failure to sue drug companies but the lack of a push by the medical establishment in this state for such a suit and the places the state goes to for advice on such matters not having their own houses conflict of interest-free?  I’m definitely open to alternate explanations of why we are letting millions if not billions of dollars go without claim by our state Attorney General.

Governor Kaine Chooses To Appear With President Bush at Monticello

GOVERNOR’S PUBLIC SCHEDULE FOR

FRIDAY, JULY 4 – FRIDAY JULY 11

 

Friday, July 4

 

Independence Day Celebration and Naturalization Ceremony. Governor Timothy M. Kaine will attend the annual Independence Day Celebration and Naturalization Ceremony at Monticello. The ceremony will feature remarks by President George W. Bush.

 

When:         10:00 a.m.  

 

Where:       Monticello

Charlottesville, Virginia

The New Easier Civil Commitment Laws: At Least They Fixed The Problems in Cho’s Case, Right? Wrong.

1. The Virginia Tech. shooter was allowed to live on campus again after being kicked off for misbehavior and nothing has been done to change Virginia Techs’ policies in situations such as his.

2.  The Virginia Tech. shooter’s commitment hearing was held in less than 24 hours after he was picked up by police for evaluation and the hospital had no time to properly observe him because he was there on a Sunday night and only for 14 hours.  The reason his hearing was held so quickly and without time for proper evaluation? Because the New River Valley holds commitment hearings Monday, Wednesday and Friday for the convenience of the 2 lawyers who switch roles each month as special justice and attorney for the person being committed and nothing was enacted in law nor policy to change this situation.  So if someone is picked up this Sunday afternoon in the New River Valley, the CSB and the hospital will still only have less than 24 hours to evaluate the person.  Great job of addressing the problems General Assembly, Governor and Commission on Mental Health Law Reform.  I would have supported waiting 24 hours before holding a hearing to give a fairer chance in both directions but we had a special special justice from Richmond on the Commission who said it would prevent him from ordering forced drugging immediately if he had to wait 24 hours and we all know it’s all about the forced injections……not.

3. The Virginia Tech. shooter was selectively mute but was ordered into talk therapy, clearly there was no thought of what actually would work to help him.  Was money given to CSB’s and others to provide alternative therapies to folks who cannot benefit from traditional treatment by the General Assembly et. al.? No.  In fact, the new legislation provides no new money even for traditional talk therapy which most CSB’s in Virginia cannot afford to provide given the extremely low reimbursement rate by Virginia’s Medicaid program.  The new money is all about crisis services after the fact and inpatient beds.  Or is it?  Because apparently the funds for LOS purchase of community inpatient funds have been cut to CSB’s as of July 1, the same day the new laws go into effect.  So we will have more folks committed and less money to pay for community beds for them.  Catch and release with a permanent and stigmatizing record.

4. The Virginia Tech shooter’s evaluation and hearing were both extremely short, less than 15 minutes.  So presumably this was fixed in the new laws to make sure enough time is taken in evaluation and hearings to make sure everyone knows what is really going on with someone, right?  Wrong.  There is no requirement in the new laws that evaluators nor special justices spend more time with the people being sent for commitment and no incentive for them to given that the scandalously low fees paid to both have not been raised one bit.  But, independent evaluators will now be allowed to evaluate someone by video conference which is sure to help with picking up on nuances of behavior and issues, not. 

5. Well at least we must have made commitment hearings and hospitalization more trauma-informed and less likely to cause narcissistic injury which could lead to rage and acting out in someone such as Cho right?  Okay, don’t make me laugh.  Not even close, nothing, nada, trauma is the order of the day as it always was. 

So in some, we have taken away the civil liberties of an entire group of Virginia citizens and called it the “Virginia Tech.” legislation which is offensive and stigmatizing in itself and on top of that, not even true.  The legislation that was passed would not have prevented the Virginia Tech. tragedy.  Not that anyone with any common sense and without a political agenda ever really thought we could prevent tragedies by changing laws.  Let’s outlaw tornadoes! That will work. 

Good Idea To Involuntarily Admit More Citizens to Caring, Safe, Compassionate Psychiatric Units Like This One in New York State….NOT

Hospital Video Shows No One Helped Dying Woman

By John Marzulli Daily News June 30th 2008

A shocking video shows a woman dying on the floor in the psych ward at Kings County Hospital, while people around her, including a security guard, did nothing to help.

After an hour, another mental patient finally got the attention of the indifferent hospital workers, according to the tape, obtained by the Daily News.

Worse still, the surveillance tape suggests hospital staff may have falsified medical charts to cover the utter lack of treatment provided Esmin Green before she died.

“Thank God for the videotape because no one would have believed this could have happened,” said Donna Lieberman, executive director of the New York Civil Liberties Union.

“There’s a clear possibility of criminal wrongdoing with regard to recordkeeping, and that has to be investigated.”

The city Department of Investigation is part of a sweeping probe that has brought some changes to the ward known as G Building.

A federal suit filed last year in Brooklyn alleged neglect and abuse of mental patients at the hospital. The suit sparked an investigation by the Brooklyn U.S. attorney’s civil rights unit before the June 19 death.

Two different security guards spotted Green, a native of the island of Jamaica, prone on the floor and did nothing, the tape shows. They have been fired, along with four other staffers.

Green, 49, taken to the unit for “agitation,” keels over out of her chair at 5:32a.m., according to the time stamp on the video. She had been sitting about 3feet from an observation window. Two other patients were in the room.

Green is lying facedown on the floor, her legs splayed, when a security guard strolls by at 5:53 a.m., looks at her for about 20 seconds and then walks away.

She is writhing on the floor, thrashing her legs, about 6 a.m., when her medical chart contends she was “awake, up and about, went to the bathroom.”

Green rolls on her back at 6:04a.m. She stops moving at 6:08 a.m., but two minutes later a security guard pushed his chair into camera view.

He never gets out of the chair, but looks at Green and scoots away. A female patient who was in and out of the room finally brings a clinic staffer to check the woman and a crash cart is summoned.

The medical chart claims she was “sitting quietly in [the] waiting room” at 6:20 a.m., although she was already dead. The cause of death is still under investigation.

“We are shocked and distressed by this situation,” the Health and Hospitals Corp. said in a statement.

http://www.nydailynews.com/ny_local/brooklyn/2008/06/30/2008-06-30_hospital_video_shows_no_one_helped_dying.html

T-4 Revisited: A reminder of what can happen when fascism is cloaked in compassionate care of the handicapped

Do we think this cannot happen again? Maybe not in the exact same way, but it is happening…NOW…all across our country, fueled by greed, hatred, fear and spread as progressive transformation for the good of our society. Through intentional misinformation about mental illness and those affected by it, certain interest groups with deep pockets and strong political ties have been waging an insidious war on the consciousness of our nation, urging on fear and prejudice, yet concealed quietly within the gift of a Trojan Horse…”compassion and treatment for the sickest of the sick”.

We hear about “the right to treatment” from lobby groups like NAMI and the Treatment Advocacy Center, much the same as you will hear about “the right to death” in the excerpt below. We hear about “incurable illness” as well, but framed in a slightly different package, because the goal here for our government and it’s utilization of psychiatry and their interdependent relationships all funded by Pharma and tax dollars is not the same as it was for the Nazis. The goal here is not necessarily to kill, but to create the necessary lower strata of society that is required for the bureaucracies involved to serve themselves and each other by organizing their power to promote their own wealth, a wealth that depends on a class of people that must be managed and held in place. The underlying principles of fascism are the same however for both the Nazis and our “compassionate advocates” fighting for forced drugging and looser commitment standards.

We are told that there is no point in providing housing or food or other programs of support for those mentally ill who refuse the drugs…”life unworthy” of basic necessities…unless “medicated”.

We are to be convinced that forcing sedating, mind-numbing drugs into the bodies of innocent people will prevent crime…a better, safer society for all by way of chemical straightjacket.

Families and patients are being told that these psych laws will provide “access” to “the best and most modern treatments available”.

We are being sold the idea that forcible drugging with dangerous psychotropics and looser commitment criteria is for the good of “the severely and persistently mentally ill”, and that this “is a therapeutic treatment and a compassionate act completely consistent with medical ethics.”

Our doctors did not become psychiatric police overnight. The transformation has taken time and required a veneer of scientific justification along with the politically opportunistic use of tragedy to wear down public resistance, the shock doctrine in play.

We are being offered pseudo-scientific rationalizations for the forced drugging and involuntary commitment of the “sickest of the sick” which are being bolstered by misguided economic considerations. According to bureaucratic calculations, state funds that go to the care of criminals and the mentally ill could be put to better use, for example, by building new large state hospitals or outpatient commitment laws…

The scapegoating of the mentally ill as a danger and threat to society for the purpose of degrading civil rights and increasing legal authority over certain groups is a pre-figuration of what is to come for all. No one will be immune. The dragnet has been cast.

The parallels are uncanny…

Murder of the handicapped

Berenbaum, Michael (1993). The World Must Know: The History of the Holocaust as told in the United States Holocaust memorial Museum. Boston, MA: Little, Brown and Company. (pp.63-65).

Mass murder began with the death of a few individuals. In September 1939, Hitler signed an order empowering his personal physician and the chief of Fuhrer Chancellory to put to death, those unsuited to live. He backdated it to September 1st 1939, the day World War II began, to give it the appearance of a wartime measure. In the directive:

Reich leader Philip Bouhler and Dr. Brandt are charged with responsibility for expanding the authority of physicians, to be designated by name, to the end that patients considered incurable according to the best available human judgment of their state of health, can be granted a mercy killing.

What followed was the so-called euthanasia program, in which men, women, and children who were physically disabled, mentally retarded, or emotionally disturbed were systematically killed.

Within a few months, the T-4 program involved virtually the entire German psychiatric community. A new bureaucracy, headed by physicians, was established with a mandate to “take executive measures against those defined as ‘life unworthy of living’”.

A statistical survey of all psychiatric institutions, hospitals, and homes for the chronically ill patients was ordered. At Tiergarten 4, three medical experts reviewed the forms reviewed by institutions throughout Germany, but did not examine any patients or read their medical records. Nevertheless, they had the power to decide life or death.

Patients whom it was decided to kill were transported to six killing centers: Hartheim, Sonnenstein, Grafeneck, Bernberg, Hadamar, and Brandenburg. The members of the SS in charge of the transports donned white coats to keep up the charade of a medical procedure.

The first killings were by starvation: starvation is passive, simple and natural. Then injections of lethal doses of sedatives were used. Children were easily “put to sleep”. But gassing soon became the preferred method of killing. Fifteen to twenty people were killed in a chamber disguised as a shower. The lethal gas was provided by chemists, and the process was supervised by physicians. Afterward, black smoke billowed from the chimneys as the bodies were burned in adjacent crematoria.

Families of those killed were informed of the transfer. They were assured that their loved ones were being moved in order to receive the best and most modern treatments available. Visits, however, were not possible. The relatives then received condolence letters, falsified death certificates signed by physicians, and urns containing ashes. There were occasional lapses in bureaucratic efficiency, and some families received more than one urn. They soon realized something was amiss.

A few doctors protested. Heinrich Bonhoeffer, a leading psychiatrist, worked with his son Dietrich, a pastor who actively opposed the regime, to contact church groups, urging them not to turn patients in church-run institutions over to the SS. (Dietrich Bonhoeffer was executed by the SS just before the end of the war.) A few physicians refused to fill out the requisite forms. Only one psychiatrist, Professor Gottfried Ewald of the University of Gottingen, openly opposed the killing.

Doctors did not become killers overnight. The transformation took time and required a veneer of scientific justification. As early as 1895, a widely used German medical textbook made a claim for “the right to death”. In 1920, a physician and a prominent jurist argued that destroying “life unworthy of life” is a therapeutic treatment and a compassionate act completely consistent with medical ethics.

Soon after the Nazis came to power, the Bavarian Minister of Health proposed the mentally ill, the mentally retarded and other “inferior” people be isolated and killed. “This policy has already been initiated in our concentration camps,” he noted. A year later, mental institutions throughout the Reich were instructed to “neglect” their patients by withholding food and medical treatment.

Pseudo-scientific rationalizations for the killing of the “unworthy” were bolstered by economic considerations. According to bureaucratic calculations, state funds that went to the care of criminals and the insane could be put to better use, for example, by loans to newly married couples. Incurably sick children were seen as a burden for the healthy body of the Volk, the German people. In a time of war, it was not difficult to lose sight of the absolute value of human life. Hitler understood this. Wartime, he said, “was the best time for elimination of the incurably ill”.

The murder of the handicapped was a pre-figuration of the Holocaust. The killing centers to which the handicapped were transported were the antecedents of death camps. The organized transportation of the handicapped foreshadowed mass deportation. Some of the physicians who became specialists in the technology of cold-blooded murder in the late 1930s later staffed the death camps. All their moral, professional and ethical inhibitions had been lost.

During the German euthanasia program, psychiatrists were able to save some patients, at least temporarily, but only if the psychiatrists cooperated in sending others to their death. In the Jewish communities of the territories later conquered by the Nazi’s, Judenrat leaders, Jews appointed by the Germans to take charge of the ghettos, had to make similar choices.

Gas chambers were first developed at the handicapped killing centers. So was the use of burning to dispose of dead bodies. In the death camps, the technology was taken to a new level: thousands could be killed at one time and their bodies burned within hours.

The Roman Catholic church, which had not taken a stand on the Jewish question, protested the “mercy killing”. Count von Galen, the Bishop of Munster, openly challenged the regime, arguing that it was the duty of Christians to oppose the taking of human life even if this were to cost them their own lives. It seemed to have an effect.

On August 24, 1941, almost two years after the euthanasia program was initiated, it appeared to cease. In fact, it had gone underground. The killing did not end; mass murder was just beginning. Physicians trained in the medical killing centers went on to grander tasks. Irmfired Eberl, a doctor whose career began in the T-4 program, became the commandant of Treblinka, where killing of a magnitude as yet unimagined would take place…

New Uniform Preadmission Screening Report: Includes “Blaming” as a “Level of Insight”!!!!

Obeying the Law Is For People With Mental Illness and Other Suckers

http://www.dmhmrsas.virginia.gov/OMH-MHReform/080626Memo3.pdf

The law says independent evaluators must pass a certification program designed by the Department of Mental Health, Retardation and Substance Abuse but guess what?  The program is not yet available and is not scheduled for completion until June of ‘09 according to this memo on DMHMRSAS’s website.  Hmm.  So if a person under outpatient commitment under the new law says give me a year and I’ll follow your law, is he or she going to get a pass just like DMHMRSAS? 

* I am not a lawyer, this is not a legal opinion.  Than again, DMHRSAS are not lawyers either even when they play one on their website. 

And I Bet A Lot of You Thought Mandatory Outpatient Treatment Would Be Supervised by an M.D. or a Psychologist…

Silly you, than.  Everyone knows people with psychiatric labels don’t need licensed professionals to manage even court ordered care, pretty much anyone who is willing to relocate will do.  Heck, they aren’t even asking for a mental health degree.  But who cares?  As long as that forced drugging is in place who cares if no one qualified to notice serious side effects that can lead to death and disability occur under order of the state?  No one in power in this state cares.  If you think I’m taking this personally, yes, I am.  Which is still my right in Virginia at least until the Commission on Mental Health Law Reform and all its enablers in Virginia gets more laws passed restricting my thoughts and feelings to what they decide are “appropriate.”

  Mandatory Outpatient Treatment Commitment Hearing
Crossroads Service Board

Mandatory Outpatient Treatment/ Commitment Hearing Coordinator To provide coordination of services to persons who have been ordered to participate in mandatory outpatient treatment for mental illness and to insure that these services are provided in accordance with the expectations of the courts. Responsible to coordinate with psychiatric hospitals to attend hearings, coordination of further assessment if required with special justice, and evaluation. Master’s degree in human services field is req’d as is previous exp. in similar setting providing care. Salary commensurate w/exp. Reimbursement of relocation expenses up to $2,000 avail. to qualified applicant. Exc. fringe benefits. To apply submit agency application & salary requirement to: HR, Crossroads CSB, P. O. Drawer 248, Farmville, VA 23901. EOE. Or call (434)392-7049 for additional information. Check us out at: www.crossroadscsb.org Position #9015 will be recruited until filled.

 

The New Mental Health Laws Are Worse Than You Thought: A Radical Intepretation of the Laws by Bonnie, Cohen and Monahan is Being Taught to All Special Justices and CSB staff

Reprised because the post after this has drawn attention away from the most important issue facing us in my opinion.

It is also not clear why the print media is not covering this radical interpretation of the new laws which makes them even looser than the language of the law as passed.  Perhaps interpretation is not dramatic enough to make a good story, unfortunately, drama does not teach the public what they need to know:  that interpretation of their laws has been handed over to 3 men who are not legislators, not judges and not in the executive branch of government, 3 men who have not been elected nor appointed to any public office in fact, two law professors and a psychiatrist. 

For citizens affected by these laws, which is everyone, this interpretation and its implications are critical. 

You can now be committed if someone says there is a substantial likelihood that you will lose your job due to symptoms of mental illness.

You can now be committed if someone says there is a substantial likelihood that you could be evicted due to your mental illness or perceived mental illness.

You can now be committed if you are diabetic from taking the new psychiatric drugs and choose to stop taking your insulin at any time even though folks who did not become diabetic from the new drugs can not be committed for failing to take their insulin.  Apparently, the decision to risk amputation and kidney failure is always rational when made by the not yet diagnosed and always irrational when made by the psychiatrically labelled since Dr. Cohen argued with me more than once in taskforce meetings that non-compliant diabetics were making a rational decision.  Dr. Cohen has also written that he supports “rational suicide”, whatever that might be, but clearly it only applies to “people like us” or I should say “people like him”.  Personally, I do not believe in rational suicide and am a supporter of Not Dead Yet and would encourage anyone to try and live with their illness as long as they can, but hey, what do I know?  I’m not a psychiatrist, just a person who believes in life. 

Any hearsay or rumor of past actions or any slander or inaccuracy on an old mental health record can now be used to help lock you up against your will and force drugs on you.

According to the interpretation of Bonnie, Cohen and Monahan, if there is a 1 in 4 chance of serious harm/danger, you should be committed.  25% chance despite the Supreme Court of the United States decision that a standard of clear and convincing-more like 72% must be used in involuntary commitment.

Is it a coincidence that 3 white upper middle class men were allowed to interpret the laws of Virginia for every citizen?  I do not believe it is.  The mental health system in Virginia has been run by upper middle class white men since it began and continues to this day.  We have never had a woman Commissioner nor an African American Commissioner of our Department of Mental Health in Virginia, unlike other states.  We continue to act as if the white man knows best for women and for minorities in this state and we will all suffer for it. 

Moving out of this state where homophobia and ablism are now enshrined into law but basic health services are not funded  and the homeless are told to get a job without any help to do so is looking better and better and as soon as the real estate market comes back, if it does, I will. 

The New Mental Health Laws Are Worse Than You Thought: A Radical Intepretation of the Laws by Bonnie, Cohen and Monahan is Being Taught to All Special Justices and CSB staff

All Virginia Special Justices have now been trained in the new laws under an interpretation developed by Richard Bonnie, John Monahan and Bruce Cohen of the University of Virginia’s Institute on Law and Psychiatry.  Their interpretation is the loosest interpretation anyone could have imagined and more.  It is not clear who decided to use this radical interpretation to train not only special justices who hold hearings but also Community Service Board employees who make pre-screening decisions at an earlier training and as available on the Department of Mental Health and Retardation etc. website under Mental Health Law “Reform”.  

It is also not clear why the print media is not covering this radical interpretation of the new laws which makes them even looser than the language of the law as passed.  Perhaps interpretation is not dramatic enough to make a good story, unfortunately, drama does not teach the public what they need to know:  that interpretation of their laws has been handed over to 3 men who are not legislators, not judges and not in the executive branch of government, 3 men who have not been elected nor appointed to any public office in fact, two law professors and a psychiatrist. 

For citizens affected by these laws, which is everyone, this interpretation and its implications are critical. 

You can now be committed if someone says there is a substantial likelihood that you will lose your job due to symptoms of mental illness.

You can now be committed if someone says there is a substantial likelihood that you could be evicted due to your mental illness or perceived mental illness.

You can now be committed if you are diabetic from taking the new psychiatric drugs and choose to stop taking your insulin at any time even folks who did not become diabetic from the new drugs can now be committed for failing to take their insulin.

Any hearsay or rumor of past actions or any slander or inaccuracy on an old mental health record can now be used to help lock you up against your will and force drugs on you.

According to the interpretation of Bonnie, Cohen and Monahan, if there is a 1 in 4 chance of serious harm/danger, you should be committed.  25% chance despite the Supreme Court of the United States decision that a standard of clear and convincing-more like 72% must be used in involuntary commitment.

Is it a coincidence that 3 white upper middle class men were allowed to interpret the laws of Virginia for every citizen?  I do not believe it is.  The mental health system in Virginia has been run by upper middle class white men since it began and continues to this day.  We have never had a woman Commissioner nor an African American Commissioner of our Department of Mental Health in Virginia, unlike other states.  We continue to act as if the white man knows best for women and for minorities in this state and we will all suffer for it. 

Moving out of this state where homophobia and ablism are now enshrined into law but basic health services are not funded  and the homeless are told to get a job without any help to do so is looking better and better and as soon as the real estate market comes back, if it does, I will. 

You Have the Right to Request a Copy of the Tape of Your Involuntary Commitment Hearing in Virginia After July 1

Under the new mental health regression laws, commitment hearings will no longer be open to monitoring by advocates, lawyers and the fourth estate unless you specifically request your hearing be open.  Secret hearings have a long history of being abuses of process and this is a huge concern.  But, you now have the right to request a copy of the tape recording of your hearing after the fact at your local courthouse.  If you do not want to listen to it yourself, you may still want to request a copy for any future commitment hearing watch program that may develop in Virginia.  Don’t keep the copy where someone in your family or someone who might use it against you can find it.  As before the law changed, hearings can be closed at the “discretion” of the special justice, a discretion which was used to close all hearings to a Washington Post reporter in Prince William County.  Whether that was an abuse of discretion or not is not my call. 

If You Think I’m Over-Reacting Or That This Has No Relevance You Have Not Been Paying Attention

Schizophrenogenic Agencies and Courts in Virginia

“Understandably, parents of schizophrenics find the classification of schizophrenogenic parent offensive. No one wants to believe that they could have caused, even inadvertently, such terrible suffering in someone they love. But therapists who treat schizophrenics generally report a parenting interaction different from that usual to neurotic patients (although there are cases where relevant noxious life events have nothing to do with parents; in other cases, both parents and child are tragic victims of bad or absent professional advice). Communication deviance, measured from parental interaction, the Rorschach Inkblot Test (Rorschach, 1932), and the Thematic Apperception Test (TAT; Murray, 1943) has been found to characterize parents and adoptive parents of schizophrenics. Expressed emotion (intrusive hostility) of parents increases rehospitalization. Genetic factors, at most, represent increased vulnerability.

Pathogenesis, based on clinical observations, is measured from the TAT and is defined as the degree to which the parent, when there is a potential conflict between the needs of the child and the needs of the parent, unconsciously acts in terms of the parent’s needs without regard to the potentially conflicting needs of the child. Pathogenic parents, as well as their children, are victims in the same way that any patient who suffers psychological symptoms based on unconscious factors is a victim and not a culprit. In a series of studies, mothers of normals averaged 35% pathogenic. Mothers of schizophrenics averaged 65% pathogenic. Fathers of schizophrenics are nearly as high. Most convincing are clinical observations. Clinical examples of the meaning of pathogenesis are provided.”

I’ve been struggling all week to come up with words to describe what I feel about the ambushing of all of us who have fought for fair commitment laws by the Department of Mental Health, Mental Retardation and Substance Abuse and by the staff of the Supreme Court of Virginia in their last minute springing on us of a radically regressive interpretation of the new laws the General Assembly passed and the Governor signed.  I will leave the legalities of it to lawyers although I do wonder how the Supreme Court can interpret before enactment laws that will come to them on appeal for interpretation in time and I do wonder why DMHMRSAS could not and did not go through the customary regulatory process for a state agency.  But I am not a lawyer and I will leave that to the lawyers to figure out.

My feelings are personal and political.  I feel betrayed, I feel sideswiped, the victim of a sneak attack by people I thought would not do that even though I knew we disagreed on many matters of substance.  I feel like a child growing up in a family where parents put their own needs ahead of the interests of their children over and over while telling the outside world what a sacrifice they have made in raising their difficult children.  I feel like a child living in a family where black is white and blue is red and if you say no, blue is not red, you have violated a norm and are in big trouble with a capital T and are branded disloyal and a trouble maker.  I feel as if I am being asked to accept falsehood as truth and unreality as reality and I can not and will not do that.  Because that way lies madness.

The Treatment Advocacy Center Signed A Post With a NAME! Is It Getting Cold in the Seventh Circle or What? :)

Course there is no content to the post, just the offensive title of E. Fuller Torrey’s new book which he was shilling on c-span this morning, but at least there is a name on the blog and contact information. What’s next?  Enabling comments? Putting in links that aren’t repeats?  Using unspun statistics?  Stopping creating more prejudice and legal discrimination against people with mental illness????  Nah.  I’m just joking.  That could never happen.  :)

Non-hypothetical Example of What Will Happen Under the Radical Interpretation of Virginia’s New MH Laws Promulgated by DMHMRSAS and the Virginia Supreme Court

Agencies fined for placing man in mental facility

 By Gary Grado, Tribune January 2, 2007

 Charles Haroutunian rested on a squeaky gurney as an ambulance driver wheeled him into the mental unit that would be his home for the next six months. The stench of urine and feces quickly engulfed the 80-year-old Sun Lakes man as he made his way through the Santa Rosa Care Center in Tucson.

 

 

 

He heard wailing from some unseen place and then turned his head and saw someone slumped in a wheelchair.

The World War II veteran did not belong in the locked ward for severely mentally ill and brain-damaged patients. But a falling out with his family, a suicide attempt and a court order led him there.

A system breakdown left him there.

“You see it in the movies and you don’t believe it,” Haroutunian said. “I believe it. I lived through it.”

For his troubles, a Pima County jury awarded the man $310,250 in October, assigning most of the blame to Value Options, Maricopa County’s behavioral health provider for the indigent. The jury laid a relatively smaller portion of the blame on the Maricopa County Public Fiduciary, the agency charged with protecting vulnerable adults.

Haroutunian’s descent into “hell” began Sept. 2, 2002, when he took 520 Valium tablets while feeling depressed and abandoned.

“I woke up in the hospital, that’s all I know,” Haroutunian said.

He soon found himself at Maricopa Medical Center in Phoenix answering questions from a psychiatrist who told him his family was trying to have him committed to a mental hospital.

Two psychiatrists examined him — one saying he met the requirements for forced treatment and the other say- ing he did not. The latter didn’t show up for a court hearing, and Judge Barbara Rodriguez Mundell of Maricopa County Superior Court ordered his commitment, Haroutunian said.

Cheryl Blum, Haroutunian’s attorney, said in opening statements of the trial that the court order required Value Options to provide treatment for Haroutunian, but the company stepped aside and let the county hospital decide where he would go.

The hospital set up his stay at Santa Rosa Care Center, the only place where the Veterans Administration would cover the bill.

Value Options does not comment on litigation, said company spokesman Joseph Ortiz. But defense attorney Lisa Mills said at trial that Value Options was responsible only for Haroutunian’s outpatient treatment and he was suing the wrong party.

Haroutunian said he didn’t question his move to the Tucson nursing home because he didn’t know his rights.

“I just thought I had my 180 days of punishment for breaking man’s law and God’s law by trying to take my life,” Haroutunian said.

He was placed in a locked unit that housed about 30 men and women who were either mentally ill or brain-damaged. Many were elderly.

Haroutunian’s two roommates wore diapers, and one banged his bed and yelled most of the day. Haroutunian also shared a bathroom with two men with hepatitis C and one with stomach cancer who would vomit after most meals — a smell Haroutunian said was worse than decomposing bodies.

“I can still smell it,” said Haroutunian, who trembles when he talks about his experiences there.

He often went without eating because patients would spit in his food or try to snatch it.

There was no one to speak with because most of the patients were incoherent. He said it wasn’t until his final month that a patient came with whom he could have a sensible conversation.

About two months into his stay, Haroutunian said a psychotherapist named Wendy White started working there. She made the rounds and introduced herself to everyone.

“This man comes up to me and says, ‘I really shouldn’t be here,’” said White, now in private practice.

White said she mentioned the patient’s comment to other staff members. Much to her surprise, they agreed.

White began looking at Haroutunian’s chart and couldn’t tell whose authority he was under. Weeks of making phone calls to the various agencies were fruitless.

“I just couldn’t get him the help he needed,” White said. “No one seemed alarmed.”

She suspected Haroutunian might be a victim of age discrimination. “My argument was, if he was 26, this wouldn’t be happening,” White said.

Blum told the jury that Value Options didn’t look into the type of facility that Haroutunian was in or whether he was getting treatment, medication or access to the courts.

Value Options never finished paperwork to transfer his case to its counterpart in Pima County, no one requested a termination of the court order and someone at Value Options mistakenly closed the file when it shouldn’t have been.

“Once they closed his file, he literally ceases to exist in the mental health system,” Blum said.

White said she helped Haroutunian find a lawyer, who eventually pieced together Haroutunian’s situation. “A man shouldn’t have to spend his own money to get out of a nursing home,” White said.

The attorney, Paul Bartlett, managed to get an emergency hearing before Mundell, who fined Value Options and the Public Fiduciary $10,000 each. The judge ordered that Haroutunian be examine